Crowder Sylvia L, Najam Natasha, Sarma Kalika P, Fiese Barbara H, Arthur Anna E
Department of Food Science and Human Nutrition, University of Illinois at Urbana-Champaign, 386 Bevier Hall 905 S Goodwin Ave, Urbana, IL, 61801, USA.
Department of Health Outcomes and Behavior, Moffitt Cancer Center, 4117 E Fowler Ave., Tampa, FL, 33617, USA.
Support Care Cancer. 2021 Aug;29(8):4349-4356. doi: 10.1007/s00520-020-05981-1. Epub 2021 Jan 7.
The purpose of this qualitative study was to better understand the lived experience of head and neck cancer (HNC) survivors between 6 months to 9 years post-radiation. Quality of life, coping strategies, concerns for the future, and preferences for supportive care were explored.
Semi-structured interviews were conducted in 31 HNC survivors from a Midwestern hospital. Interviews were recorded, transcribed verbatim and analyzed using qualitative thematic analysis.
Survivors described restrictions on daily living, social eating, and financial concerns. Despite these restrictions, survivors reported an overall high mentality and enjoyment of life. Coping considerations included adapting to a new normal and increased involvement in cancer support and faith groups. Preferences for supportive care included receiving more information about and being more involved in the treatment care plan, referrals to therapy and support groups, and more comprehensive follow-up in survivorship.
While long-term HNC survivors adapt to daily living restrictions, a high proportion continue to have unmet needs. This data can guide the development of HNC survivorship interventions to inform optimal clinical guidelines based on patients' perceived needs. This qualitative study uncovered distinct perceived needs of HNC survivors which can inform future service development. Incorporating referrals to supportive care services including speech language pathologist, physical therapists, and dietitians into the standard of care before, during, and after treatment would assist survivors in adapting to life after treatment and managing long-term health consequences of their disease.
本定性研究的目的是更好地了解头颈癌（HNC）幸存者在放疗后6个月至9年的生活经历。探讨了生活质量、应对策略、对未来的担忧以及对支持性护理的偏好。
对一家中西部医院的31名头颈癌幸存者进行了半结构化访谈。访谈进行了录音，逐字转录，并使用定性主题分析进行分析。
幸存者描述了日常生活、社交饮食方面的限制以及经济担忧。尽管有这些限制，幸存者报告总体心态积极，享受生活。应对因素包括适应新常态以及更多地参与癌症支持团体和宗教团体。对支持性护理的偏好包括获得更多关于治疗护理计划的信息并更多地参与其中、转介至治疗和支持团体，以及在康复期进行更全面的随访。
虽然长期头颈癌幸存者适应了日常生活限制，但仍有很大一部分人的需求未得到满足。这些数据可为头颈癌康复干预措施的制定提供指导，以便根据患者的感知需求制定最佳临床指南。这项定性研究揭示了头颈癌幸存者独特的感知需求，可为未来的服务发展提供参考。在治疗前、治疗期间和治疗后将转介至包括言语病理学家、物理治疗师和营养师在内的支持性护理服务纳入护理标准，将有助于幸存者适应治疗后的生活并应对疾病的长期健康后果。
