Meshkinyazd Ali, Bordbar Mohammadreza Fayyazi, Heydari Abbas
PhD Student in Nursing, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran.
Department of Psychiatry, School of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.
Iran J Nurs Midwifery Res. 2021 Jan 18;26(1):18-24. doi: 10.4103/ijnmr.IJNMR_267_19. eCollection 2021 Jan-Feb.
Social stigma is the most common and challenging burden of care on the family of people with Borderline Personality Disorder (BPD) In Iran, despite the cultural and social influences, this issue has been less studied. Therefore, present study was conducted to determine the lived experiences of caregivers of patients with BPD of social stigma.
This qualitative study was performed at Ibn Sina hospital in Mashhad, Iran from 2017 to 2019. Participants were selected by purposive and snowball sampling method. Data were collected through semi-structured interviews. Data saturation was achieved after 16 interviews. Finally, the data were analyzed by the method proposed by Diekelmann (1989).
In data analysis, one main theme and two sub-themes emerged. The main themes include Black shadow. Two sub-themes consisted of society dagger and secrecy. The sub-theme of society dagger included the two common meanings (inner turmoil in response to the stigma of others and weakening of family status among relatives and acquaintances). The sub-theme of secrecy comprised of the three common meanings (concealment of disease, hide hospitalization, and seclusion).
An understanding of the experience of family stigma can lead to the development of supportive strategies to manage this problem among caregivers of patients with BPD. Nurses can support caregivers by offering them opportunities to discuss how stigma is disrupting their caregiving roles. They can also support the caregivers in negotiating the experienced social and emotional distress and when necessary, refer them to the other members of healthcare teams.
社会污名是边缘型人格障碍（BPD）患者家庭最常见且具有挑战性的护理负担。在伊朗，尽管存在文化和社会影响，但对这一问题的研究较少。因此，本研究旨在确定BPD患者照顾者所经历的社会污名。
本定性研究于2017年至2019年在伊朗马什哈德的伊本·西那医院进行。采用目的抽样和滚雪球抽样方法选取参与者。通过半结构化访谈收集数据。在进行16次访谈后达到数据饱和。最后，采用迪克尔曼（1989年）提出的方法对数据进行分析。
在数据分析中，出现了一个主要主题和两个子主题。主要主题为“黑影”。两个子主题包括“社会利刃”和“保密”。“社会利刃”子主题包含两个常见含义（因他人的污名而内心 turmoil以及在亲属和熟人中家庭地位的削弱）。“保密”子主题由三个常见含义组成（隐瞒疾病、隐瞒住院情况和隔离）。
了解家庭污名的经历有助于制定支持性策略，以帮助BPD患者的照顾者应对这一问题。护士可以通过为照顾者提供讨论污名如何干扰其护理角色的机会来支持他们。护士还可以在照顾者应对所经历的社会和情感困扰时提供支持，并在必要时将他们转介给医疗团队的其他成员。
