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默默哀悼:因癌症去世的台湾地区丧亲家属的经历。

Grieving in silence: Experiences of bereaved Taiwanese family members whose loved ones died from cancer.

机构信息

Department of Nursing, College of Medicine, National Cheng Kung University, Taiwan.

School of Nursing, San Francisco State University, USA.

出版信息

Eur J Oncol Nurs. 2021 Jun;52:101967. doi: 10.1016/j.ejon.2021.101967. Epub 2021 Apr 28.

Abstract

PURPOSE

To explore the experience of grief in bereaved Taiwanese family members whose loved ones died from cancer.

METHOD

A qualitative study was used in this interview-based investigation. A purposive sampling technique and maximum variability were used to obtain a comprehensive overview. A total of 16 Taiwanese adults whose beloved family member had died of cancer were recruited from a palliative care unit of a medical center in southern Taiwan. Interviews were transcribed verbatim and analyzed using thematic analysis. The data analysis and interpretation were critically evaluated and discussed until final agreement was achieved. Recruitment was terminated when the data were found to be saturated.

RESULTS

Four "TEAR" themes reflecting the experience of grief in bereaved Taiwanese family were extracted from the transcript analyses: taboo topics, emotion hiding, asynchronous grief, and relational tension. The participants endured the mutual influence of the family atmosphere, which was akin to silently walking the grief journey and inconsistent with TEAR model of task-oriented mourning. Silent grieving dominated their lives, which is different from Western culture with a more explicit expression of grief.

CONCLUSIONS

Silent grief provides a new avenue for exploring grief among bereaved families, potentially impacting their ability to fully grieve through the expressed feelings proposed by William Worden's TEAR model of task-oriented mourning. Thus, this silent grieving should be acknowledged. The findings provide support for developing family-centered, culturally tailored bereavement care. Healthcare professionals play an important role in detecting changes in family dynamics that may interfere with support from family members.

摘要

目的

探讨因癌症去世的台湾丧亲家庭成员的悲痛体验。

方法

本研究采用基于访谈的定性研究方法,采用目的性抽样技术和最大变异性,以全面了解丧亲体验。从台湾南部一家医疗中心的姑息治疗病房招募了 16 名因亲人癌症去世的台湾成年人。对访谈进行逐字转录,并使用主题分析进行分析。对数据分析和解释进行了批判性评估和讨论,直到达成最终共识。当数据达到饱和时,招募就会终止。

结果

从转录分析中提取出反映台湾丧亲家庭成员悲痛体验的四个“TEAR”主题:禁忌话题、情感隐藏、异步悲痛和关系紧张。参与者忍受着家庭氛围的相互影响,这类似于默默地走在悲痛的旅程中,与以任务为导向的哀悼的 TEAR 模型不一致。他们的生活被默默的悲伤所主宰,这与西方文化中更明确表达悲伤的方式不同。

结论

默默的悲伤为探索丧亲家庭的悲伤提供了一个新的途径,可能会影响他们通过以任务为导向的哀悼的 TEAR 模型所提出的表达情感来充分悲伤的能力。因此,这种默默的悲伤应该得到承认。这些发现为制定以家庭为中心、文化上量身定制的丧亲护理提供了支持。医疗保健专业人员在发现可能干扰家庭成员支持的家庭动态变化方面发挥着重要作用。

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