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针对痴呆患者家庭成员照料者的心理教育计划,以减轻负担并提高患者生活质量:一项随机对照试验。

Psychoeducational Program for the Family Member Caregivers of People with Dementia to Reduce Perceived Burden and Increase Patient's Quality of Life: A Randomized Controlled Trial.

机构信息

Department of Family medicine, Faculty of Medicine, Cairo University, Cairo, Egypt.

Department of Psychiatry, Faculty of Medicine, Cairo University, Cairo, Egypt.

出版信息

J Prim Care Community Health. 2021 Jan-Dec;12:21501327211014088. doi: 10.1177/21501327211014088.

Abstract

BACKGROUND

Dementia is one of the world's greatest public health issues. Most people with dementia receive home care, and family members are vulnerable to feeling burdened and depressed that reinforces the need for caregiver-driven services to mitigate these negative effects.

OBJECTIVE

The purpose of this research was to evaluate the effect of the psychoeducational program on burden and quality of life of family caregivers for people with dementia.

METHODS

This randomized controlled trial RCT) was conducted on 60 family caregivers. Participants were randomly assigned to receive either the 8-session psychoeducational program (study group) or routine care only (control group). The demographic data of the caregivers and their patients, the burden of caregivers using Zarit Burden Interview (ZBI), and the quality of life of the patients using Quality of Life in Alzheimer Disease (QoL-AD) questionnaire were measured before and after the psychoeducational program and compared between the study group and the control group.

RESULTS

The results revealed that 80% of the family caregivers were female and 42% were daughters. The mean ± SD of the baseline burden was 61 ± 13.7 and 60.9 ± 10 in the study and the control group, respectively. ZBI burden score in the study group demonstrated a significant drop after the psychoeducational program compared to the control group. Logistic regression analysis showed that caregivers who received the psychoeducational program have OR (95% CI) of 14 (3.1-67.8) compared to those who did not receive the psychoeducational program.

CONCLUSIONS

Psychoeducational program is effective in reducing the family caregivers' perceived burden. These findings need to be considered in developing comprehensive dementia care programs to well increase the strategies that help caregivers to deal with their patients.

摘要

背景

痴呆症是全球面临的重大公共卫生问题之一。大多数痴呆症患者接受家庭护理,而家庭成员容易感到负担过重和抑郁,这加剧了对以照顾者为导向的服务的需求,以减轻这些负面影响。

目的

本研究旨在评估心理教育计划对痴呆症患者家庭照顾者负担和生活质量的影响。

方法

这是一项随机对照试验(RCT),共纳入 60 名家庭照顾者。参与者被随机分配接受 8 节心理教育课程(研究组)或仅接受常规护理(对照组)。在心理教育计划前后测量照顾者的人口统计学数据和患者的情况、照顾者的负担(使用 Zarit 负担量表)以及患者的生活质量(使用阿尔茨海默病生活质量问卷),并在研究组和对照组之间进行比较。

结果

结果显示,80%的家庭照顾者为女性,42%为女儿。研究组和对照组的基线负担平均值分别为 61±13.7 和 60.9±10。与对照组相比,研究组接受心理教育计划后 ZBI 负担评分显著下降。逻辑回归分析显示,接受心理教育计划的照顾者的 OR(95%CI)为 14(3.1-67.8),而未接受心理教育计划的照顾者的 OR 为 1。

结论

心理教育计划可有效减轻家庭照顾者的负担。在制定全面的痴呆症护理计划时,需要考虑这些发现,以增加帮助照顾者应对患者的策略。

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