Vaegter Henrik Bjarke, Christoffersen Lars Oxlund, Enggaard Thomas Peter, Holdggard Dorte Elise Møller, Lefevre Tram Nguyen, Eltved Randi, Reisenhus Christina Høegh, Licht Torsten Wentzer, Laustsen Mette Mebus, Hansson Susanne Haase, Jensen Per Føge, Larsen Thomas Rene Friis, Alpiger Stephan, Mogensen Bibsen Guldhammer, Høybye Mette Terp
Pain Research Group, Pain Center, Odense University Hospital, Odense, Denmark.
Department of Clinical Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark.
J Pain Res. 2021 May 4;14:1215-1230. doi: 10.2147/JPR.S306504. eCollection 2021.
PainData is an electronic internet-based clinical pain registry established to improve the understanding and treatment of high-impact chronic pain. The primary aim of this paper is to describe socio-demographics, pain characteristics, quality of life, and treatment values at baseline and follow-up in individuals referred to public and private interdisciplinary pain centers in Denmark between 2018 and 2020.
Self-reported patient-reported outcomes collected through PainData before (n=12,257) and after (n=4,111) treatment across 13 public and private interdisciplinary specialized pain centers in Denmark (87% of all pain centers in Denmark) are described.
Mean duration of pain was 10 years, and one in three patients reported chronic widespread pain. More than 40% reported opioid use, and 50% had tried four or more different treatment modalities prior to referral. More than 60% reported poor sleep, severe fatigue, and memory and/or concentration deficits. Mean scores on pain catastrophizing, fear of movement, and pain-related disability were high, whereas scores on pain acceptance and self-efficacy were low. Physical and mental health were rated as poor and fair, respectively. One in four patients reported being very much improved or much improved after treatment. Items commonly reported after treatment were increased knowledge about pain, emotions and mood (66.5%), being better at accepting life with chronic pain (63.1%), and improved activity pacing (60.6%).
The PainData registry, containing data from a large cohort of individuals, can help to improve the understanding and treatment of high-impact chronic pain, and collaborations with other researchers are welcome.
PainData是一个基于互联网的电子临床疼痛登记系统，旨在增进对高影响性慢性疼痛的理解与治疗。本文的主要目的是描述2018年至2020年间转诊至丹麦公立和私立跨学科疼痛中心的个体在基线和随访时的社会人口统计学特征、疼痛特点、生活质量及治疗价值观。
描述了通过PainData在丹麦13个公立和私立跨学科专业疼痛中心（占丹麦所有疼痛中心的87%）治疗前（n = 12,257）和治疗后（n = 4,111）收集的患者自我报告结局。
疼痛的平均持续时间为10年，三分之一的患者报告有慢性广泛性疼痛。超过40%的患者报告使用过阿片类药物，50%的患者在转诊前尝试过四种或更多不同的治疗方式。超过60%的患者报告睡眠不佳、严重疲劳以及记忆力和/或注意力缺陷。疼痛灾难化、运动恐惧和疼痛相关残疾的平均得分较高，而疼痛接纳和自我效能感得分较低。身体健康和心理健康评分分别为差和一般。四分之一的患者报告治疗后有很大改善或有较大改善。治疗后常见报告的项目包括对疼痛、情绪和心境的了解增加（66.5%）、更善于接受慢性疼痛的生活（63.1%）以及活动节奏改善（60.6%）。
包含大量个体数据的PainData登记系统有助于增进对高影响性慢性疼痛的理解与治疗，欢迎与其他研究人员合作。
