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“在痛苦的阴影下生活和在阴影中生活的痛苦之间游走”——患有慢性广泛性疼痛的女性的日常生活体验:一项定性研究。

"Moving between living in the shadow of pain and living a life with the pain in the shadows" - women's experiences of daily life with chronic widespread pain: a qualitative study.

机构信息

School of Health and Welfare, Halmstad University, Halmstad, Sweden.

Spenshult Research and Development Centre, Halmstad, Sweden.

出版信息

Int J Qual Stud Health Well-being. 2021 Dec;16(1):1926057. doi: 10.1080/17482631.2021.1926057.

Abstract

: Long-term pain is a public health problem but few studies have focused on experiences among women with CWP. This study aimed to explore women's experiences of the impact of CWP on daily life.: The participants were 19 women between 45-67 years old, who had developed CWP between 1995 and 2016. Individual interviews were conducted and analysed with qualitative content analysis.: Daily life with CWP was expressed in the main theme "Moving between living in the shadow of pain or living a life with the pain in the shadows" including three themes and eight subthemes; 1) living with invisible challenges by feeling neglected as a person and feeling lonely among other people; 2) struggling with limitations by moving between ability and inability, stress and worries, and being dependent on others; and 3) encountering daily life with varying degrees of flexibility by standing still and giving up, moving back and forth by adapting and striving forward with resistance.: Women experienced different ways of how CWP influenced their daily life with challenges, limitations, and flexibility. Daily life with CWP entails moving between living in the shadow of pain and living a life with the pain in the shadows.

摘要

长期疼痛是一个公共卫生问题,但很少有研究关注慢性盆腔痛(CWP)女性的体验。本研究旨在探讨女性对 CWP 对日常生活影响的体验。

参与者为 19 名年龄在 45-67 岁之间的女性,她们在 1995 年至 2016 年间患有 CWP。采用个体访谈进行研究,并使用定性内容分析法进行分析。

CWP 对日常生活的影响体现在主题“在疼痛的阴影下生活或在疼痛的阴影中生活之间的移动”中,包括三个主题和八个子主题;1)感到被忽视和在他人中感到孤独,从而生活在无形的挑战中;2)在能力和无能、压力和担忧、依赖他人之间移动,与限制作斗争;3)以不同程度的灵活性面对日常生活,静止不动和放弃,通过适应来回移动,以及抵抗困难向前推进。

女性经历了 CWP 影响日常生活的不同方式,包括挑战、限制和灵活性。CWP 对日常生活的影响是在疼痛的阴影下生活和在疼痛的阴影中生活之间的移动。

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The epidemiology and economic consequences of pain.疼痛的流行病学和经济后果。
Mayo Clin Proc. 2015 Jan;90(1):139-47. doi: 10.1016/j.mayocp.2014.09.010.

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