Hurtubise Karen, Brousselle Astrid, Noel Melanie, Jordan Abbie, White Jo, Rasic Nivez, Camden Chantal
Faculté de Médecine et Sciences de la Santé, Université de Sherbrooke, Sherbrooke, Québec, Canada.
School of Public Administration, University of Victoria, Victoria, British Columbia, Canada.
Can J Pain. 2021 Feb 3;5(1):1-21. doi: 10.1080/24740527.2020.1858709.
: Little is known about how the specialized treatment journey is perceived by youth with pain-related disability and their parents. : Describe and compare the treatment effects and outcomes as perceived by youth and their parents enrolled in intensive interdisciplinary pain treatment (IIPT) or multimodal treatment (MMT). : Eleven IIPT youth and five parents and three MMT youth and five parents were recruited. All were asked to complete a treatment journey timeline, followed by separately conducted semistructured interviews. Transcribed interviews were analyzed using reflective thematic analysis. : The main themes spanned the treatment trajectory. All participants described similar initial struggles (Theme 1). Positive and negative treatment effects associated with acquisitions and disruptions (Theme 2), and outcomes post-discharge related to supports and realities (Theme 3) emerged. Knowledge, skills, and support acquisition during treatment and feeling empowered and confident to self-manage postdischarge were identified as IIPT benefits. However, the change effort and life disruptions required and the difficulty transitioning to real life postprogram were acknowledged as detrimental IIPT impacts. Continuing with life as usual and maintaining supports in daily contexts (e.g., school personnel, friends) were reported MMT benefits. However, the challenges of managing pain, treatment adherence within the competing demands of daily realities, and the lack of support to integrate strategies were emphasized as detrimental MMT impacts. : Detailed impacts of two specialized multidisciplinary pain rehabilitation interventions on the lives of youth with pain-related disability and their parents are described. The treatments benefits and previously unexplored detrimental effects are unveiled.
关于患有疼痛相关残疾的青少年及其父母如何看待专门的治疗过程，我们所知甚少。描述并比较参与强化跨学科疼痛治疗（IIPT）或多模式治疗（MMT）的青少年及其父母所感知到的治疗效果和结果。招募了11名接受IIPT治疗的青少年及其5名父母，以及3名接受MMT治疗的青少年及其5名父母。所有人都被要求完成一个治疗过程时间表，随后分别进行半结构化访谈。对转录的访谈内容采用反思性主题分析法进行分析。主要主题贯穿治疗轨迹。所有参与者都描述了相似的初始挣扎（主题1）。出现了与收获和干扰相关的积极和消极治疗效果（主题2），以及出院后与支持和现实相关的结果（主题3）。在治疗期间获得的知识、技能和支持，以及出院后自我管理时感到有能力和自信被确定为IIPT的益处。然而，所需的改变努力和生活干扰，以及项目结束后向现实生活过渡的困难被认为是IIPT的不利影响。继续照常生活并在日常环境中维持支持（如学校工作人员、朋友）被报告为MMT的益处。然而，强调了在日常现实的竞争需求中管理疼痛、坚持治疗的挑战，以及整合策略缺乏支持是MMT的不利影响。描述了两种专门的多学科疼痛康复干预措施对患有疼痛相关残疾的青少年及其父母生活的详细影响。揭示了治疗的益处和以前未被探索的不利影响。
