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参与者生成的时间线:一种参与式工具,用于探索患有慢性疼痛的年轻人和父母的医疗保健体验叙述。

Participant-Generated Timelines: A Participatory Tool to Explore Young People With Chronic Pain and Parents' Narratives of Their Healthcare Experiences.

机构信息

CanChild Centre for Childhood Disability Research, Faculty of Health, McMaster University, Hamilton, ON, Canada.

School of Rehabilitation Sciences, Faculty of Health, McMaster University, Hamilton, ON, Canada.

出版信息

Qual Health Res. 2023 Sep;33(11):931-944. doi: 10.1177/10497323231189388. Epub 2023 Aug 4.

DOI:10.1177/10497323231189388
PMID:37539703
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10494482/
Abstract

Visual methods are becoming more evident in health research. Timeline drawings have been used as a participatory tool alongside interviews in life course research. In this article, we describe how a method involving timeline generation can explore patient experiences along a treatment continuum. Grounded in previously published evidence and using specific examples from two studies exploring the experiences of young people treated for chronic pain, we outline the key components of this method. Moreover, we highlight the flexibility of its application and the importance of using a person-centered approach in tailoring the application pragmatically to study population-specific needs and characteristics, while answering the research question. We also reflect on how the dynamic visual display of the timeline and participants' explanations add perspective and understanding to complex and multidimensional human experiences associated with healthcare treatment. Furthermore, we outline how this method can help capture changes in the meaning and sense-making of these experiences over time, all the while fostering empowerment in study participants. Finally, the key considerations of using the method are outlined. It is our aim that this article provides the details required to inspire others to consider this novel method as a means of capturing the healthcare experiences of young people with other chronic conditions, an important first step in fostering the changes required to improve the quality of healthcare services and research.

摘要

视觉方法在健康研究中越来越明显。时间线绘图已被用作生活历程研究中访谈的参与工具。在本文中,我们描述了如何使用涉及时间线生成的方法来探索沿着治疗连续体的患者体验。基于先前发表的证据,并使用两项研究中探索接受慢性疼痛治疗的年轻人的经验的具体示例,我们概述了该方法的主要组成部分。此外,我们强调了其应用的灵活性,以及在根据研究人群的具体需求和特征对其进行定制时采用以患者为中心的方法的重要性,同时回答研究问题。我们还反思了时间线的动态视觉显示以及参与者的解释如何为与医疗保健治疗相关的复杂和多维人类体验增添视角和理解。此外,我们概述了该方法如何帮助捕捉这些体验的意义和意义随时间的变化,同时增强研究参与者的权能。最后,概述了使用该方法的关键考虑因素。我们的目的是,本文提供了所需的详细信息,以激发其他人考虑这种新颖的方法来捕捉患有其他慢性疾病的年轻人的医疗保健体验,这是改善医疗保健服务和研究质量所需变革的重要第一步。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/192c3351b153/10.1177_10497323231189388-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/18fe45c5eb14/10.1177_10497323231189388-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/5f8be780a97c/10.1177_10497323231189388-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/816f5ad6c0da/10.1177_10497323231189388-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/95c0e8f691f5/10.1177_10497323231189388-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/192c3351b153/10.1177_10497323231189388-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/18fe45c5eb14/10.1177_10497323231189388-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/5f8be780a97c/10.1177_10497323231189388-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/816f5ad6c0da/10.1177_10497323231189388-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/95c0e8f691f5/10.1177_10497323231189388-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86ad/10494482/192c3351b153/10.1177_10497323231189388-fig5.jpg

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Paediatr Neonatal Pain. 2023 Mar 17;5(2):38-48. doi: 10.1002/pne2.12098. eCollection 2023 Jun.
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