Zerbe Paul-Simon, Schulz Eberhard, Dixius Andrea, Körner Mirjam
Klinik für Psychiatrie, Psychotherapie und Psychosomatik im Kindes- und Jugendalter, Universitätsklinikum Freiburg.
Institut für Medizinische Psychologie und Medizinische Soziologie, Albert-Ludwigs-Universität Freiburg.
Z Kinder Jugendpsychiatr Psychother. 2021 May;49(5):213-226. doi: 10.1024/1422-4917/a000797.
The desire and the experience of participation among children and adolescents in inpatient mental healthcare Children have the right to participate in decisions that affect them. However, the stages and domains of participation relevant within inpatient child and adolescent psychiatry have rarely been empirically investigated. The present study closes this research gap. A prospective, multicenter, questionnaire-based survey was conducted. The questionnaire comprised 100 items, summarized in 16 scales, to assess the desire and the experience of participation. The data were quantitively evaluated. children and adolescents from 5 psychiatric hospitals took part in the study. Overall, they wished more participation than experienced. The higher the level of participation, the greater the difference was between wish and reality. The desire for participation is particularly high for decisions regarding communication with family and friends. The largest difference between desire and experience related to respectful and trusting interaction with patients, and for female patients, this difference was even higher. Participation means more than informed consent. There is still potential for expanding participation in child and adolescent psychiatry, especially at higher levels of participation and concerning decisions about communication with family and friends. A respectful and trusting interaction with patients, regardless of age, sex, or illness, is fundamental.
儿童和青少年参与住院精神卫生保健的意愿与体验 儿童有权参与影响他们的决策。然而，住院儿童和青少年精神病学中相关的参与阶段和领域很少得到实证研究。本研究填补了这一研究空白。开展了一项前瞻性、多中心、基于问卷的调查。问卷包含100个项目，归纳为16个量表，用于评估参与意愿和体验。对数据进行了定量评估。来自5家精神病医院的儿童和青少年参与了该研究。总体而言，他们希望的参与程度高于实际体验到的。参与水平越高，愿望与现实之间的差异就越大。对于与家人和朋友沟通的决策，参与意愿尤其强烈。愿望与体验之间最大的差异与对患者的尊重和信任互动有关，对于女性患者，这种差异甚至更大。参与不仅仅意味着知情同意。在儿童和青少年精神病学中，扩大参与仍有潜力，尤其是在更高水平的参与以及关于与家人和朋友沟通的决策方面。无论年龄、性别或疾病如何，与患者进行尊重和信任的互动是至关重要的。
