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安置死亡与濒死:在生命终点处营造场所。

Placing death and dying: Making place at the end of life.

机构信息

London School of Hygiene and Tropical Medicine, Tavistock Place 15-17, WC1H 9SH, London, United Kingdom.

Open University (OU), Walton Hall, Kents Hill, MK7 6AA, Milton Keynes, United Kingdom.

出版信息

Soc Sci Med. 2021 Dec;291:113974. doi: 10.1016/j.socscimed.2021.113974. Epub 2021 Apr 29.

Abstract

Over the last decade, policies in both the UK and many other countries have promoted the opportunity for patients at the end of life to be able to choose where to die. Central to this is the expectation that in most instances people would prefer to die at home, where they are more likely to feel most comfortable and less medicalised. In so doing, recording the preferred place of death and reducing the number of hospital deaths have become common measures of the overall quality of end of life care. We argue that as a consequence, what constitutes a desired or appropriate place is routinely defined in a very simple and static 'geographical' way, that is linked to conceptualising death as an unambiguous and discrete event that happens at a precise moment in time in a specific location. In contrast, we draw on 18 months of ethnographic fieldwork with two inner-London palliative care teams to describe the continual work staff do to make places suitable and appropriate for the processes of dying, rather than for a singular event. In this way, instead of 'place of death' merely defined in geographic terms, the palliative care staff attend to the much more dynamic relation between a patient and their location as they approach the end of their life. Central to this is an emphasis on dying as an open-ended process, and correspondingly place as a social space that reflects, and interacts with, living persons. We propose the term 'placing work' to capture these ongoing efforts as a patient's surroundings are continually altered and adjusted over time, and as a way to acknowledge this as a significant feature of the care given.

摘要

在过去的十年中,英国和许多其他国家的政策都提倡让生命末期的患者有机会选择在哪里去世。这一政策的核心是期望大多数情况下,人们更愿意在家里去世,因为在家里他们会感到更舒适,更少受到医疗化的影响。因此,记录患者希望去世的地点并减少医院死亡人数已成为衡量临终关怀整体质量的常见措施。我们认为,因此,构成理想或适当地点的因素通常是以一种非常简单和静态的“地理”方式来定义的,这种方式将死亡概念化为一个明确而离散的事件,在特定的时间和地点发生。相比之下,我们借鉴了与两个伦敦内城姑息治疗团队进行的 18 个月的民族志实地调查,来描述工作人员为使地点适合和适合死亡过程而进行的持续工作,而不是为了单一事件。通过这种方式,姑息治疗人员关注的不是仅仅用地理术语定义的“死亡地点”,而是患者在接近生命终点时与他们所处位置之间的更具动态性的关系。这一工作的核心是强调死亡是一个没有终点的过程,相应地,地点是一个反映和与生存者互动的社会空间。我们提出“安置工作”一词来捕捉这些持续不断的努力,因为患者的周围环境会随着时间的推移而不断改变和调整,同时也承认这是护理工作的一个重要特征。

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