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改善沙特阿拉伯阿西尔地区癫痫患者的公众污名、社会文化观念和社会认同。

Improving public stigma, sociocultural beliefs, and social identity for people with epilepsy in the Aseer region of Saudi Arabia.

作者信息

Abdel Ghaffar Nawal F, Asiri Reem N, Al-Eitan Laith N, Alamri Reem S, Alshyarba Reem M, Alrefeidi Faris A, Asiri Ashwag, Alghamdi Mansour A

机构信息

Neurology Department, Kasr Al Ainy Hospital, Faculty of Medicine, Cairo University, Giza 12613, Egypt.

Neurology Department, Aseer Central Hospital, Abha 62523, Saudi Arabia.

出版信息

Epilepsy Behav Rep. 2021 Apr 9;16:100442. doi: 10.1016/j.ebr.2021.100442. eCollection 2021.

Abstract

Differences in the sociocultural practice and biases against people with epilepsy (PWE) largely contribute to the development of stigmatization. In this study, we evaluated factors that impact stigma for PWE involved in evolution and maintenance to report changes in the public awareness and cultural practices. We performed a cross-sectional study in which data were collected from a self-administered electronic survey composed of 33 items targeting the population in the Aseer region. Feedback response was obtained from 937 respondents. Of these, 921 participants (98.3%) had heard or read about the disorder previously. Approximately 84.8% believed that epilepsy was one of the brain disorders. 95.8% disagreed that epilepsy was due to a contagious disease. However, 40.1% of the responders were convinced that it was the result of a spiritual reason. Still, more than 9% believed treating PWE should be approached spiritually. About 75% felt that epilepsy could be the results of a test delievered by God. In addition to the clinical impact from seizures in PWE, it carries a social label and public stigma that influences one's social prognosis. Raising awareness through campaigns would improve the knowledge and practices of the population and hence provide a healthier environment for PWE, alleviating feelings of stigma, and improving their quality of life.

摘要

社会文化习俗的差异以及对癫痫患者的偏见在很大程度上导致了污名化的形成。在本研究中,我们评估了影响癫痫患者污名化演变和维持的因素,以报告公众认知和文化习俗的变化。我们进行了一项横断面研究,通过一份针对阿西尔地区人群的包含33个项目的自填式电子调查问卷收集数据。获得了937名受访者的反馈。其中,921名参与者(98.3%)之前听说过或阅读过这种疾病。约84.8%的人认为癫痫是脑部疾病之一。95.8%的人不同意癫痫是由传染病引起的。然而,40.1%的受访者坚信这是精神原因导致的。仍有超过9%的人认为应该从精神层面治疗癫痫患者。约75%的人觉得癫痫可能是上帝考验的结果。除了癫痫发作对患者的临床影响外,它还带有社会标签和公众污名,这会影响患者的社会预后。通过开展宣传活动提高认知将改善公众的知识和行为,从而为癫痫患者提供更健康的环境,减轻污名感,提高他们的生活质量。

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