Department of Pediatrics, University of Calgary, Calgary, AB, Canada.
Department of Clinical Neurosciences University of Calgary, Calgary, AB, Canada.
Epilepsia Open. 2021 Jun;6(2):345-358. doi: 10.1002/epi4.12480. Epub 2021 Mar 10.
To describe the development of the Pediatric Epilepsy Outcome-Informatics Project (PEOIP) at Alberta Children's Hospital (ACH), which was created to provide standardized, point-of-care data entry; near-time data analysis; and availability of outcome dashboards as a baseline on which to pursue quality improvement.
Stakeholders involved in the PEOIP met weekly to determine the most important outcomes for patients diagnosed with epilepsy, create a standardized electronic note with defined fields (patient demographics, seizure and syndrome type and frequency and specific outcomes- seizure type and frequency, adverse effects, emergency department visits, hospitalization, and care pathways for clinical decision support. These were embedded in the electronic health record from which the fields were extracted into a data display platform that provided patient- and population-level dashboards updated every 36 hours. Provider satisfaction and family experience surveys were performed to assess the impact of the standardized electronic note.
In the last 5 years, 3,245 unique patients involving 13, 831 encounters had prospective, longitudinal, standardized epilepsy data accrued via point-of-care data entry into an electronic note as part of routine clinical care. A provider satisfaction survey of the small number of users involved indicated that the vast majority believed that the note makes documentation more efficient. A family experience survey indicated that being provided with the note was considered "valuable" or "really valuable" by 86% of respondents and facilitated communication with family members, school, and advocacy organizations.
The PEOIP serves as a proof of principle that information obtained as part of routine clinical care can be collected in a prospective, standardized, efficient manner and be used to construct filterable process/outcome dashboards, updated in near time (36 hours). This information will provide the necessary baseline data on which multiple of QI projects to improve meaningful outcomes for children with epilepsy will be based.
描述艾伯塔省儿童医院（ACH）儿科癫痫结果信息学项目（PEOIP）的发展情况，该项目旨在提供标准化的即时数据录入；近实时数据分析；并提供结果仪表板，作为追求质量改进的基线。
参与 PEOIP 的利益相关者每周开会，确定诊断为癫痫的患者最重要的结果，创建一个具有标准化电子记录和定义字段的电子记录（患者人口统计学、癫痫发作和综合征类型和频率以及特定结果-癫痫发作类型和频率、不良反应、急诊就诊、住院治疗以及临床决策支持的护理途径。这些字段嵌入电子健康记录中，然后从电子健康记录中提取这些字段到数据显示平台，该平台提供患者和人群级别的仪表板，每 36 小时更新一次。进行了提供者满意度和家庭体验调查，以评估标准化电子记录的影响。
在过去的 5 年中，通过在电子记录中进行即时数据录入，有 3245 名独特的患者涉及 13831 次就诊，前瞻性地纵向积累了标准化的癫痫数据。对少数参与用户的提供者满意度调查表明，绝大多数人认为该记录使文档记录更高效。家庭体验调查表明，86%的受访者认为提供该记录“有价值”或“非常有价值”，并有助于与家庭成员、学校和倡导组织的沟通。
PEOIP 证明了作为常规临床护理一部分获得的信息可以以前瞻性、标准化、高效的方式收集，并用于构建可过滤的流程/结果仪表板，并且可以在近实时（36 小时）内更新。这些信息将为改善癫痫儿童有意义的结果的多个 QI 项目提供必要的基线数据。
