College of Nursing, 14707University of Massachusetts Amherst, Amherst, MA, USA.
Dementia (London). 2021 Nov;20(8):2891-2915. doi: 10.1177/14713012211021722. Epub 2021 May 27.
Supporting human dignity is the essence of delivery of care. Dignity is one's sense of self-value that is influenced by the perceived value attributed to the individual from others. Individuals with Alzheimer's disease and related dementias (ADRD) are at risk of violations of their dignity, due to their diminished autonomy, the alteration in their sense of self, the loss of meaningful social roles, and their limited interactions with peers and confirmation of identity.
A scoping review was conducted to explore the state of art regarding the dignity of individuals with ADRD. Methods: A search was conducted using CINAHL, PubMed, Web of Science, and PsycINFO. Relevant articles were analyzed and organized based on the themes they addressed, and a narrative description of findings was presented.
Twenty-six articles were included in the review. Findings highlighted characteristics of care that affected the dignity of these individuals. Researchers found that care was task-centered, depersonalized, and lacked a genuine connection. Individuals with ADRD experienced embarrassment, lack of freedom, and powerlessness, which contributed to feelings of being devalued, and threatened their dignity. Studies testing interventions to enhance dignity were either inconclusive, lacked rigor, or had no lasting effect. Conclusion: The dignity of individuals with ADRD may be violated during healthcare interactions. More research is needed to objectively measure the dignity of these individuals and examine the effectiveness of interventions aimed at promoting dignity.
维护人的尊严是提供护理的核心。尊严是一个人对自我价值的认知，受到他人对个体赋予的价值的影响。患有阿尔茨海默病和相关痴呆症（ADRD）的个体由于自主能力下降、自我意识改变、丧失有意义的社会角色以及与同龄人互动受限和身份认同受到限制，其尊严可能受到侵犯。
本研究进行了范围综述，以探讨有关 ADRD 个体尊严的现状。方法：使用 CINAHL、PubMed、Web of Science 和 PsycINFO 进行了检索。根据文章所涉及的主题对相关文章进行了分析和组织，并呈现了发现的叙述性描述。
综述共纳入了 26 篇文章。研究结果强调了影响这些个体尊严的护理特征。研究人员发现，护理以任务为中心、缺乏人性化，且缺乏真诚的联系。ADRD 个体经历了尴尬、缺乏自由和无力感，这些都导致了他们被贬低的感觉，威胁到了他们的尊严。测试旨在增强尊严的干预措施的研究结果要么不确定，要么缺乏严谨性，要么没有持久效果。
在医疗保健互动中，ADRD 个体的尊严可能受到侵犯。需要进一步研究来客观衡量这些个体的尊严，并研究旨在促进尊严的干预措施的有效性。
