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“或许我们正在忽视人性层面”——医生对慢性疼痛或多发性硬化症患者存在、精神及宗教需求的处理方式。一项质性访谈研究。

'Maybe we are losing sight of the human dimension' - physicians' approaches to existential, spiritual, and religious needs among patients with chronic pain or multiple sclerosis. A qualitative interview-study.

作者信息

Andersen Aida Hougaard, Assing Hvidt Elisabeth, Hvidt Niels Christian, Roessler Kirsten K

机构信息

Department of Psychology, Faculty of Health Science, University of Southern Denmark, Odense, Denmark.

Research Unit of General Practice, University of Southern Denmark, Odense, Denmark.

出版信息

Health Psychol Behav Med. 2020 Jul 23;8(1):248-269. doi: 10.1080/21642850.2020.1792308.

DOI:10.1080/21642850.2020.1792308
PMID:34040871
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8114351/
Abstract

OBJECTIVE

Research suggests that existential, spiritual, and religious issues are important for patient's psychological adjustment when living with chronic pain and multiple sclerosis. However, there is a paucity of studies investigating how physicians experience and approach these patients' needs.

DESIGN

Physicians' experiences with and approaches to existential, spiritual, and religious needs when treating chronic pain or multiple sclerosis were studied in eight semi-structured interviews and analysed using interpretative phenomenological analysis (IPA).

RESULTS

Physicians found that only few patients had spiritual and religious needs; however, they experienced that every patient were struggling with existential challenges related to the illness and rooted in a changed identity and approaching death. How the physicians approached these needs appeared to be influenced by six conditions: Their medical culture, training, role, experiences of time pressure, their personal interests, and interpersonal approach.

CONCLUSION

Physicians' training seems better suited to meet biomedical objectives and their patients' concrete needs than patients' wish for a relational meeting focused on their subjective lifeworld. This challenge is discussed in relation to modern patient-centeredness, doctor-patient relationship, culturally constructed experiences of privacy, and future clinical practice and research needs.

摘要

目的

研究表明,存在、精神和宗教问题对于慢性疼痛和多发性硬化症患者的心理调适至关重要。然而,鲜有研究调查医生如何体验并满足这些患者的需求。

设计

通过八次半结构化访谈,研究医生在治疗慢性疼痛或多发性硬化症时对患者存在、精神和宗教需求的体验及应对方式,并采用解释现象学分析(IPA)进行分析。

结果

医生发现只有少数患者有精神和宗教需求;然而,他们体会到每个患者都在与与疾病相关的存在挑战作斗争,这些挑战源于身份的改变和对死亡的临近。医生应对这些需求的方式似乎受到六个条件的影响:他们的医学文化、培训、角色、时间压力体验、个人兴趣和人际沟通方式。

结论

与患者希望进行专注于其主观生活世界的关系性会面相比,医生的培训似乎更适合满足生物医学目标和患者的具体需求。结合现代以患者为中心的理念、医患关系、文化建构的隐私体验以及未来临床实践和研究需求,对这一挑战进行了讨论。

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本文引用的文献

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Does Religiosity/Spirituality Play a Role in Function, Pain-Related Beliefs, and Coping in Patients with Chronic Pain? A Systematic Review.宗教信仰/灵性在慢性疼痛患者的功能、与疼痛相关的信念和应对方式中起作用吗?系统评价。
J Relig Health. 2022 Jun;61(3):2331-2385. doi: 10.1007/s10943-019-00914-7.
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'We are the barriers': Danish general practitioners' interpretations of why the existential and spiritual dimensions are neglected in patient care.“我们就是障碍”:丹麦全科医生对患者护理中存在维度和精神维度被忽视原因的解读
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Development of the EMAP tool facilitating existential communication between general practitioners and cancer patients.促进全科医生与癌症患者之间存在主义沟通的 EMAP 工具的开发。
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Being in a standstill-of-life: women's experience of being diagnosed with systemic lupus erythematosus: a hermeneutic-phenomenological study.处于生活停滞状态:女性系统性红斑狼疮确诊经历的诠释现象学研究
Scand J Caring Sci. 2018 Jun;32(2):654-662. doi: 10.1111/scs.12491. Epub 2017 Jul 12.
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The Use of Religious Coping Methods in a Secular Society: A Survey Study Among Cancer Patients in Sweden.世俗社会中宗教应对方法的使用:瑞典癌症患者的一项调查研究
Illn Crises Loss. 2017 Jul;25(3):171-199. doi: 10.1177/1054137315614513. Epub 2015 Nov 18.
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Chronic pain care.慢性疼痛护理。
Int J Psychiatry Med. 2016 Aug;51(6):563-575. doi: 10.1177/0091217417696738. Epub 2017 Jan 1.
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