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骨与软组织肉瘤罕见病注册机构的医学报告特色

A Medical Report Feature for OSSE Rare Disease Registries.

作者信息

Schueler Katja, Zieschank Axel, Göbel Jens, Vasseur Jessica, Schaaf Jannik, Hohenfellner Katharina, Wildenhain Sarah, Storf Holger

机构信息

Medical Informatics Group, University Hospital Frankfurt, Germany.

RoMed Klinikum Rosenheim, Germany.

出版信息

Stud Health Technol Inform. 2021 May 27;281:1085-1086. doi: 10.3233/SHTI210356.

Abstract

Web-based patient registries support clinicians by providing a way to effectively store and process data. Here, we present a new feature for the open-source registry software OSSE: medical reports generated with R Markdown. As part of a rare disease research project, we describe the process from requirements assessment to the current state of technical implementation. The feature offers clinicians the possibility to download customised as well as generic reports from an OSSE rare disease registry.

摘要

基于网络的患者登记系统通过提供一种有效存储和处理数据的方式来支持临床医生。在此,我们为开源登记软件OSSE展示一项新功能:使用R Markdown生成的医学报告。作为一个罕见病研究项目的一部分,我们描述了从需求评估到当前技术实施状态的过程。该功能为临床医生提供了从OSSE罕见病登记系统下载定制报告和通用报告的可能性。

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