Heydarian Nazanin, Hughes Allyson S, Morera Osvaldo F
Steve Hicks School of Social Work, The University of Texas at Austin, Austin, TX, USA.
T1D Exchange, Boston, MA, USA.
West J Nurs Res. 2022 Sep;44(9):830-837. doi: 10.1177/01939459211019421. Epub 2021 May 29.
This study used mixed methods to investigate the experiences of 33 participants who are blind (PWB) and have diabetes in managing their diabetes, support (or lack thereof) from their health care providers, and diabetes distress as PWB. Participants most frequently reported barriers to check blood glucose (55%), maintaining a healthy diet (45%), and distress due to their intersectional status of having blindness and diabetes. Those who mentioned intersectional distress of managing diabetes as a PWB tended to be Braille illiterate and less likely to use mobility tools that are symbolic of blindness (e.g., white cane, guide dog). These results illuminate heterogenous characteristics of PWB with diabetes, an understudied population of public health significance, to be considered when setting priorities for diabetes self-management support and health care coverage policy.
本研究采用混合方法,调查了33名失明且患有糖尿病的参与者在管理糖尿病方面的经历、他们从医疗保健提供者那里获得的支持(或缺乏支持的情况)以及作为失明糖尿病患者的糖尿病困扰。参与者最常报告的障碍包括血糖检测(55%)、保持健康饮食(45%)以及因失明和糖尿病的交叉状况而产生的困扰。那些提到作为失明糖尿病患者管理糖尿病时的交叉困扰的人往往是文盲,且不太可能使用象征失明的移动工具(如白色手杖、导盲犬)。这些结果揭示了患有糖尿病的失明患者的异质性特征,这是一个具有公共卫生意义但研究较少的人群,在确定糖尿病自我管理支持和医疗保健覆盖政策的优先事项时应予以考虑。