Goddard John M, Robinson Jane, Hiscock Rachel
Sheffield Children's Hospital NHS Trust, Sheffield, UK.
Br J Pain. 2021 May;15(2):155-162. doi: 10.1177/2049463720927067. Epub 2020 Jun 6.
Assessment of outcomes from health interventions are of increasing importance, primarily to identify effective and safe treatment, but also to justify funding decisions. The Bath Adolescent Pain Questionnaire (BAPQ) is a self-report questionnaire, validated in 11-18 year olds, assessing the impact of pain in multiple domains of adolescent life. The similarly validated Bath Adolescent Pain Questionnaire for Parents (BAPQ-P) uses the same domains as the BAPQ, assessing the functioning and development of the adolescent from the parents' perspective.
We conducted a prospective study, planning to routinely collect BAPQ/BAPQ-P data at initial assessment and 6 months later. All patients aged between 5 and 19 attending our chronic pain clinic for the first time between December 2009 and December 2014 were mailed BAPQ and BAPQ-P questionnaires before the first appointment and 6 months after the first appointment.
In total, 376 of 386 families returned questionnaires at time 0 and 96 after 6 months, 26% of those responded at time 0. We found statistically significant differences on patients' BAPQ questionnaires from 0 to 6 months showing improvement in all domains. A different result was found on parents' questionnaires where we only found a statistically significant difference on daily and emotional functioning. When comparing patient and parent questionnaires at 0 and 6 months, we found statistically significant differences between patients' and parents' questionnaires in the daily functioning and development domains.
We believe BAPQ and BAPQ-P measurement proved useful tools to assess response to pain management input in adolescents over a 6-month period. Our experience and results suggest that these tools can, with appropriate administrative support, be used in routine clinical practice to assess patient outcomes. We also believe that BAPQ and BAPQ-P measurements have a utility to audit pain clinic activity and potentially a use in demonstrating beneficial outcomes to commissioners.
评估健康干预的结果变得越来越重要,这主要是为了确定有效且安全的治疗方法,同时也是为了证明资金决策的合理性。巴斯青少年疼痛问卷(BAPQ)是一份自填式问卷,已在11至18岁的青少年中得到验证,用于评估疼痛对青少年生活多个领域的影响。经过类似验证的巴斯青少年家长疼痛问卷(BAPQ-P)使用与BAPQ相同的领域,从家长的角度评估青少年的功能和发育情况。
我们进行了一项前瞻性研究,计划在初次评估时和6个月后常规收集BAPQ/BAPQ-P数据。2009年12月至2014年12月期间首次到我们慢性疼痛诊所就诊的所有5至19岁患者,在首次预约前和首次预约后6个月收到了BAPQ和BAPQ-P问卷。
在第0时间点,386个家庭中有376个家庭返回了问卷,6个月后有96个家庭返回问卷,其中26%的家庭在第0时间点做出了回应。我们发现患者的BAPQ问卷在0至6个月期间存在统计学上的显著差异,表明所有领域都有改善。在家长问卷上发现了不同的结果,我们仅在日常和情绪功能方面发现了统计学上的显著差异。在比较第0时间点和6个月时患者和家长的问卷时,我们发现患者和家长的问卷在日常功能和发育领域存在统计学上的显著差异。
我们认为BAPQ和BAPQ-P测量被证明是评估青少年在6个月期间对疼痛管理投入反应的有用工具。我们的经验和结果表明,在适当的行政支持下,这些工具可用于常规临床实践中评估患者的结果。我们还认为BAPQ和BAPQ-P测量对于审核疼痛诊所的活动有用,并且可能用于向委托方展示有益的结果。