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化脓性汗腺炎的心理社会影响:临床医生实用指南。

Psychosocial impact of hidradenitis suppurativa: a practical guide for clinicians.

机构信息

Department of Internal Medicine, SUNY Downstate Health Sciences University, Brooklyn, NY, USA.

Dr Phillip Frost Department of Dermatology & Cutaneous Surgery, Miller School of Medicine, University of Miami, Miami, FL, USA.

出版信息

J Dermatolog Treat. 2022 Jun;33(4):1861-1868. doi: 10.1080/09546634.2021.1937483. Epub 2021 Jun 14.

Abstract

INTRODUCTION

Hidradenitis suppurativa (HS) is a debilitating skin disease with significant and often underappreciated effects on quality of life; available treatments fail to achieve consistent rates of remission. Targeting the psychosocial impact of HS has great potential to improve care for these patients. Although the literature on this topic is broad, there is a lack of specific tools that guide clinicians in this domain.

METHODS

The authors surveyed the literature to find the aspects of psychosocial functioning that most significantly impact Health-Related Quality of Life (HRQOL) for HS patients, and which may be assessed in a simple and efficient manner.

RESULTS AND DISCUSSION

Depression and anxiety, sexuality and body image, and financial strain were identified as the most significant drivers of poor HRQOL with the greatest potential to be screened for and addressed succinctly and effectively. A practical psychosocial management guide for clinicians is presented. The guide includes a list of preexisting validated screening questions, clear guidelines for interpretation, and a suggested management algorithm all geared toward a 'real-life' medical practice.

CONCLUSION

Such an approach holds a great potential for improving the care of patients with HS. Validation of this approach controlled trials is a logical next step.

摘要

简介

化脓性汗腺炎(HS)是一种使人衰弱的皮肤病,对生活质量有重大影响,但往往被低估;现有的治疗方法未能达到持续缓解的效果。针对 HS 的心理社会影响进行治疗有很大的潜力来改善对这些患者的护理。尽管这一主题的文献很广泛,但缺乏具体的工具来指导临床医生在这一领域的工作。

方法

作者调查了文献,以找到对 HS 患者的健康相关生活质量(HRQOL)影响最大的心理社会功能方面,以及可以以简单和有效的方式进行评估的方面。

结果与讨论

抑郁和焦虑、性和身体形象以及经济压力被确定为导致 HRQOL 较差的最大驱动因素,它们最有可能被简洁有效地进行筛查和处理。为临床医生提供了一份实用的心理社会管理指南。该指南包括一系列预先存在的经过验证的筛选问题,清晰的解释指南,以及一个建议的管理算法,所有这些都针对“现实生活”中的医疗实践。

结论

这种方法有很大的潜力改善 HS 患者的护理。对此方法进行验证——对照试验是合乎逻辑的下一步。

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