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澳大利亚自闭症谱系障碍儿童急诊就诊经历的父母横断面调查。

An Australian Cross-Sectional Survey of Parents' Experiences of Emergency Department Visits Among Children with Autism Spectrum Disorder.

机构信息

Turner Institute for Brain and Mental Health and School of Psychological Sciences, Monash University, Level 5, 18 Innovation Walk, Melbourne, VIC, 3800, Australia.

School of Applied Psychology, Griffith University, Brisbane, QLD, Australia.

出版信息

J Autism Dev Disord. 2022 May;52(5):2046-2060. doi: 10.1007/s10803-021-05091-9. Epub 2021 Jun 1.

Abstract

Parents of children with ASD who had attended an Australian emergency department (ED; n = 421) completed a questionnaire relating to their experiences in the ED, including (1) child's reason for presentation and existing comorbidities, (2) quality of care during the visit (3) child's behaviour during visit, e.g. sensory responses to the ED environment, and disruptive behaviours. Children with comorbid ASD and intellectual disability were more likely to present with gastrointestinal issues and seizures, while those with comorbid ASD and oppositional defiant disorder were more likely to present with self-injury. ED staff awareness of ASD-related issues, including communication and expression of pain, were common difficulties for parents. The ED environment (e.g. lights, sounds, waiting areas), exacerbated child anxiety and led to disruptive behaviour.

摘要

有自闭症谱系障碍儿童的家长曾在澳大利亚急诊部就诊(n=421),他们完成了一份问卷,内容涉及他们在急诊部的就诊经历,包括(1)孩子就诊的原因和现有合并症,(2)就诊期间的护理质量,(3)孩子就诊时的行为,例如对急诊部环境的感官反应和破坏性行为。患有自闭症谱系障碍合并智力残疾的儿童更有可能出现胃肠道问题和癫痫发作,而患有自闭症谱系障碍合并对立违抗性障碍的儿童更有可能出现自伤行为。急诊部工作人员对自闭症相关问题的认识,包括沟通和表达疼痛,是家长普遍面临的困难。急诊部的环境(如灯光、声音、等候区)加剧了儿童的焦虑,导致了破坏性行为。

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