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对Reddit的分析揭示了特应性皮炎患者的问题。

Analysis of Reddit Reveals Atopic Dermatitis Patient Questions.

作者信息

Kurtti Alana, Jagdeo Jared

出版信息

J Drugs Dermatol. 2021 Jun 1;20(6):653-658. doi: 10.36849/JDD.2021.5734.

DOI:10.36849/JDD.2021.5734
PMID:34076394
Abstract

BACKGROUND

Reddit, the seventh most visited website in the United States, has become an exceedingly popular platform for patients to source medical information and discuss chronic conditions.

OBJECTIVE

To uncover patient questions regarding atopic dermatitis, as physicians can use this knowledge to better address patient concerns and more comprehensively educate patients.

METHODS

The authors analyzed 1,000 questions posted on the “Hot” section of the “eczema” subreddit. Each question was then separated into categories and subcategories for analysis.

RESULTS

1,000 questions from 881 posts were analyzed. The highest proportion of questions (29.5%) were non-pharmacologic management focused, with patients inquiring about diet, over the counter skincare products, personal hygiene practices, clothing, and supplements. Non-specific management (19.1%), uncertainty about symptoms (14.6%), medications (14.3%), cause and triggers (10.3%), and mental health (6.9%) were common categories as well.

LIMITATIONS

The questions of the eczema subreddit subscribers may not reflect the questions of all atopic dermatitis patients.

CONCLUSION

This analysis demonstrates that atopic dermatitis patients require greater management guidance, especially non-pharmacologic strategies, and more comprehensive discussions regarding the range of symptoms, trigger avoidance, and mental health resources. Addressing these gaps in knowledge may lead to improved outcomes and more informed, empowered patients. J Drugs Dermatol. 2021;20(6):653-658. doi:10.36849/JDD.5734Visit the Atopic Dermatitis Resource Center.

摘要

背景

Reddit是美国访问量第七大的网站,已成为患者获取医学信息和讨论慢性病极为流行的平台。

目的

揭示患者关于特应性皮炎的问题,因为医生可利用这些知识更好地解决患者的担忧并更全面地对患者进行教育。

方法

作者分析了在“湿疹”子版块“热门”部分发布的1000个问题。然后将每个问题分为不同类别和子类别进行分析。

结果

分析了来自881个帖子的1000个问题。问题比例最高的是聚焦非药物管理方面(29.5%),患者询问饮食、非处方护肤品、个人卫生习惯、衣物和补充剂等问题。非特异性管理(19.1%)、症状不确定性(14.6%)、药物(14.3%)、病因和触发因素(10.3%)以及心理健康(6.9%)也是常见类别。

局限性

“湿疹”子版块订阅者的问题可能无法反映所有特应性皮炎患者的问题。

结论

该分析表明,特应性皮炎患者需要更多的管理指导,尤其是非药物策略,以及关于症状范围、避免触发因素和心理健康资源的更全面讨论。弥补这些知识差距可能会改善治疗效果,并使患者更加了解情况、更有自主权。《药物皮肤病学杂志》。2021年;20(6):653 - 658。doi:10.36849/JDD.5734访问特应性皮炎资源中心。

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