J Drugs Dermatol. 2021 Jun 1;20(6):623-629. doi: 10.36849/JDD.2021.5835.
Many vitiligo patients seek healthcare information online. However, the accuracy and quality of this information is unknown.
To determine the accuracy, quality, viewer engagement, and viewer experience of vitiligo videos on social media.
We searched the term “vitiligo” on YouTube. Videos were stratified based on source categories. Video accuracy was assessed using DAS and ANDI. Video quality was assessed using GQS. Viewer experience was assessed using AVA.
Sixty videos were evaluated for inclusion and exclusion criteria. We evaluated 49 videos with a total of 28.2 million views, 431,416 likes, and 61,976 comments. Of these videos, 27 (55%) were from healthcare sources, and 22 (45%) were from non-healthcare sources. When compared to videos from non-healthcare sources, videos from healthcare sources had significantly higher accuracy scores (ANDI = 3.69 ± 0.16 vs 2.77 ± 0.36; P=0.017 and DAS = 3.72 ± 0.13 vs 3.07 ± 0.28; P=0.029) but significantly fewer views (38,883 vs 1,231,947; P=0.005). Videos from alternative medicine sources had the lowest accuracy scores when compared to the remainder of the videos (ANDI = 0.5 ± 0.13 vs 3.66 ± 0.14; P<0.001 and DAS = 1.25 ± 0.11 vs 3.73 ± 0.11; P<0.001).
Inaccurate videos on vitiligo are prevalent on social media. Misinformation can lead to potentially harmful interventions and delay in seeking evidence-based care. Videos from healthcare sources were more accurate but were viewed less than those from non-healthcare sources. Further efforts are needed to improve the visibility and viewer experience of accurate healthcare content on social media. J Drugs Dermatol. 2021;20(6):623-629. doi:10.36849/JDD.5835.
许多白癜风患者在网上寻求医疗信息。然而，这些信息的准确性和质量是未知的。
确定社交媒体上白癜风视频的准确性、质量、观众参与度和观众体验。
我们在 YouTube 上搜索了“白癜风”一词。根据来源类别对视频进行分层。使用 DAS 和 ANDI 评估视频的准确性。使用 GQS 评估视频质量。使用 AVA 评估观众体验。
有 60 个视频符合纳入和排除标准。我们评估了 49 个视频，总观看次数为 2820 万次，点赞 431416 次，评论 61976 次。这些视频中，27 个（55%）来自医疗保健来源，22 个（45%）来自非医疗保健来源。与非医疗保健来源的视频相比，来自医疗保健来源的视频具有更高的准确性得分（ANDI = 3.69 ± 0.16 vs 2.77 ± 0.36；P=0.017 和 DAS = 3.72 ± 0.13 vs 3.07 ± 0.28；P=0.029），但观看次数明显较少（38883 次对 1231947 次；P=0.005）。与其余视频相比，来自替代医学来源的视频准确性得分最低（ANDI = 0.5 ± 0.13 vs 3.66 ± 0.14；P<0.001 和 DAS = 1.25 ± 0.11 vs 3.73 ± 0.11；P<0.001）。
社交媒体上普遍存在不准确的白癜风视频。错误信息可能导致潜在的有害干预措施，并延迟寻求循证护理。来自医疗保健来源的视频更准确，但观看次数少于非医疗保健来源的视频。需要进一步努力提高社交媒体上准确医疗保健内容的可见性和观众体验。J 皮肤病学杂志。2021；20（6）：623-629。doi：10.36849/JDD.5835。
