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身体素养与自闭症谱系障碍儿童:母亲经历的能力歧视、排斥和创伤。

Physical Literacy for Children Labeled With Autism Spectrum Disorder: Mothers' Experiences of Ableism, Exclusion, and Trauma.

机构信息

Memorial University of Newfoundland.

University of Alberta.

出版信息

Adapt Phys Activ Q. 2021 Oct 1;38(4):525-545. doi: 10.1123/apaq.2020-0123. Epub 2021 Jun 2.

Abstract

Countering the declining physical activity patterns of children labeled with autism spectrum disorder (ASD) has gained considerable research attention given its impact on health and quality of life. The purpose of this study was to explore how parents of children labeled with ASD understand the concept of physical literacy, based on their children's participation in community-based physical activity programs. Using interpretive phenomenological analysis, six mothers of children labeled with ASD participated in one-on-one semistructured interviews. The conceptual framework of ecological systems theory supported the rationale for the study purpose, provided structure for the interview guide, and offered a reflexive context for interpretation. Four themes were generated from the thematic analysis: From embodied movement to normative skill expectations, Be flexible, not rigid, Systematic exclusion, and Valuable? . . . Absolutely! Despite experiences of marginalization, exclusion, and trauma within physical activity programs, mothers valued physical literacy development for their children given the positive outcomes of increasing family connections, engagement with peers, and enhanced wellness.

摘要

鉴于体力活动减少对儿童健康和生活质量的影响,针对自闭症谱系障碍(ASD)儿童体力活动减少的问题已经引起了相当多的研究关注。本研究旨在探讨社区为基础的体力活动项目中,ASD 儿童的父母如何理解身体素养的概念,这基于他们的孩子参与其中。研究采用解释现象学分析方法,6 位 ASD 儿童的母亲参与了一对一的半结构化访谈。生态系统理论的概念框架为研究目的提供了理论基础,为访谈指南提供了结构,并为解释提供了反思性背景。主题分析产生了四个主题:从身体运动到规范技能期望,灵活,不僵化,系统排斥,以及有价值吗?……绝对!尽管在体力活动项目中经历了边缘化、排斥和创伤,但母亲们还是非常重视孩子的身体素养发展,因为这会增加家庭联系、与同龄人交往以及提高整体健康水平。

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