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“我们以为自己是孤立无援的”:青少年厌食症患者兄弟姐妹的主观体验

"We Thought We Were Alone": The Subjective Experience of the Siblings of Anorexic Adolescent Patients.

作者信息

Persico Angelo, Grandclerc Salome, Giraud Catherine, Moro Marie Rose, Blanchet Corinne

机构信息

APHP, Hôpital Cochin, Maison de Solenn, Paris, France.

CESP, Fac. de médecine - Univ. Paris Sud, Fac. de médecine - UVSQ, INSERM ≪ DevPsy ≫, Université Paris Saclay, Villejuif, France.

出版信息

Front Psychiatry. 2021 May 17;12:664517. doi: 10.3389/fpsyt.2021.664517. eCollection 2021.

Abstract

The siblings of patients suffering from Anorexia Nervosa (AN) are potentially affected by a disturbed emotional experience that often remains undetected. In order to bring them a psychological support, the Maison de Solenn proposed a support group program for these siblings. The current research explores their mental representations of AN and their emotional experience in the support group named "sibling group." This exploratory study is based on a phenomenological and inductive qualitative method. Four girls and three boys aged between 6 and 19 participating in the "sibling group" were included in a one-time focus group session using a semi-structured interview guide. The thematic data analysis was performed by applying the methods of interpretative phenomenological analysis. Themes that emerged from the interview fall into four categories: AN explained by siblings; the individual emotional experience of siblings; the family experience of siblings and the experience inside the "sibling group." According to our participants, the "sibling group" thus functions as a good compromise between keeping an active role in the anorexic patient's care and taking a step back to avoid being eaten up by the illness. Sibling-group participants retrieved a sense of belonging, which is normally one of the functions of being a sibling. It is important to note that the "sibling group" is part of the comprehensive (or global) family-based approach included in an institutional multidisciplinary integrative care framework.

摘要

神经性厌食症(AN)患者的兄弟姐妹可能会受到一种常未被察觉的情感体验紊乱的影响。为了给予他们心理支持,索伦之家为这些兄弟姐妹推出了一个支持小组项目。当前的研究探讨了他们对神经性厌食症的心理表征以及在名为“兄弟姐妹小组”的支持小组中的情感体验。这项探索性研究基于现象学和归纳性定性方法。使用半结构化访谈指南,对参与“兄弟姐妹小组”的4名年龄在6至19岁之间的女孩和3名男孩进行了一次性焦点小组访谈。通过应用解释性现象学分析方法进行主题数据分析。访谈中出现的主题分为四类:兄弟姐妹对神经性厌食症的解释;兄弟姐妹的个人情感体验;兄弟姐妹的家庭体验以及“兄弟姐妹小组”内部的体验。据我们的参与者表示,“兄弟姐妹小组”因此在积极参与厌食症患者护理与退后一步避免被疾病吞噬之间起到了很好的平衡作用。兄弟姐妹小组的参与者找回了一种归属感,而这通常是作为兄弟姐妹的功能之一。需要注意的是,“兄弟姐妹小组”是机构多学科综合护理框架中所包含的全面(或整体)家庭治疗方法的一部分。

相似文献

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[Siblings of prepubesecent anorexic children].
Arch Pediatr. 2014 Oct;21(10):1149-52. doi: 10.1016/j.arcped.2014.06.003. Epub 2014 Jul 14.

本文引用的文献

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Epidemiology, course, and outcome of eating disorders.进食障碍的流行病学、病程和转归。
Curr Opin Psychiatry. 2013 Nov;26(6):543-8. doi: 10.1097/YCO.0b013e328365a24f.
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Presse Med. 2014 Mar;43(3):263-9. doi: 10.1016/j.lpm.2013.03.009. Epub 2013 Jul 31.
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[Epidemiology of anorexia nervosa: a review].神经性厌食症的流行病学:综述
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