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父母参与神经性厌食症早期干预项目的质性研究。

Parental engagement in an early intervention program for anorexia nervosa: a qualitative study.

作者信息

Diot Thomas, Loisel Alexandra, Moro Marie Rose, Blanchet Corinne

机构信息

Assistance Publique-Hôpitaux de Paris, Cochin Hospital, Maison de Solenn-Maison des Adolescents, 97 Boulevard de Port-Royal, Paris, 75014, France.

Inserm U1018, Team DevPsy, CESP, Paris Saclay University, Paris, France.

出版信息

Eur Child Adolesc Psychiatry. 2025 Jul 31. doi: 10.1007/s00787-025-02827-1.

Abstract

Anorexia nervosa (AN) is a severe chronic condition requiring early and effective intervention. Family involvement is considered a cornerstone of adolescent treatment, yet the specific dynamics of early parental engagement into care remain poorly understood. This study aimed to explore the processes underlying parental involvement in early care for adolescents with AN, within the context of a family-based day program (EVAFAM) in France. We conducted a qualitative study using semi-structured interviews with 15 parents (7 fathers, 8 mothers) whose adolescents participated in the EVAFAM program between January 2023 and June 2024. We identified three main processes that lead to parental engagement in care: (1) a grieving process, where parents recognized the chronic nature of the illness and their emotional responses to the diagnosis; (2) an active reconstruction process, where parents adapted their attitudes and behaviors to become therapeutic partners; and (3) the relationship to the institutional care framework, which provided both authority and support, while sometimes generating ambivalence. Engagement was supported by increased knowledge and structured interventions but challenged by emotional strain and uncertainty. Notably, early intervention enabled families to shift from denial to active participation, suggesting that engagement is a progressive construction, not an initial precondition. Understanding the trajectories of parental engagement during early intervention highlights key levers for supporting families, including acknowledging emotional transitions, providing practical tools, and reinforcing institutional alliances. These insights can inform tailored interventions and enhance family-centered care for adolescents with AN.

摘要

神经性厌食症(AN)是一种严重的慢性疾病,需要早期有效的干预。家庭参与被视为青少年治疗的基石,但父母早期参与护理的具体动态仍知之甚少。本研究旨在探讨在法国一个基于家庭的日间项目(EVAFAM)背景下,父母参与青少年神经性厌食症早期护理的潜在过程。我们进行了一项定性研究,对15名父母(7名父亲,8名母亲)进行了半结构化访谈,他们的青少年在2023年1月至2024年6月期间参加了EVAFAM项目。我们确定了导致父母参与护理的三个主要过程:(1)一个悲伤过程,父母认识到疾病的慢性性质以及他们对诊断的情绪反应;(2)一个积极重建过程,父母调整自己的态度和行为以成为治疗伙伴;(3)与机构护理框架的关系,该框架既提供权威又提供支持,但有时也会产生矛盾情绪。知识的增加和结构化干预支持了参与,但情绪压力和不确定性对其构成了挑战。值得注意的是,早期干预使家庭从否认转向积极参与,这表明参与是一个渐进的构建过程,而不是一个初始前提条件。了解早期干预期间父母参与的轨迹突出了支持家庭的关键杠杆,包括承认情绪转变、提供实用工具以及加强机构联盟。这些见解可为量身定制的干预措施提供参考,并加强对神经性厌食症青少年的以家庭为中心的护理。

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