Division of Psychiatry, 4919University College London, London, UK.
Centre for Applied Dementia Studies, 1905University of Bradford, Bradford, UK.
Dementia (London). 2021 Nov;20(8):2982-3005. doi: 10.1177/14713012211023676. Epub 2021 Jun 10.
Homecare workers carry out complex work with people living with dementia, while under-supported, undervalued and undertrained. In this ethnographic study, we explore the skills, training and support needs of homecare workers supporting people living with dementia.
We conducted 82 interviews with people living with dementia ( = 11), family caregivers ( = 22), homecare staff ( = 30) and health and social care professionals ( = 19) and conducted 100-hours of participant observations with homecare workers ( = 16). We triangulated interview and observational findings and analysed data thematically.
We developed four themes: 1) 'Navigating the homecare identity and role': describing challenges of moving between different role identities and managing associated expectations, 2) 'Developing and utilising relational and emotional skills': boundaries between caring and getting emotionally involved felt blurred and difficult to manage, 3) 'Managing clients who resist care': homecare workers experienced clients' reactions as challenging and felt "thrown to the wolves" without sufficient training, and 4) 'Drawing on agency and team support': homecare work could be isolating, with no shared workplace, busy schedules and limited opportunity for peer support.
It is important that training and support for homecare workers addresses the relational, emotional and rights-based aspects of the role. Where a flexible, responsive, person-centred service is required, corresponding training and support is needed, alongside organisational practices, taking account of the broader context of the homecare sector.
家庭护理人员在为痴呆症患者提供护理时承担着复杂的工作,但他们的支持、重视和培训不足。在这项民族志研究中,我们探讨了家庭护理人员支持痴呆症患者的技能、培训和支持需求。
我们对 11 名痴呆症患者、22 名家庭照顾者、30 名家庭护理人员和 19 名卫生和社会保健专业人员进行了 82 次访谈,并对 16 名家庭护理人员进行了 100 小时的参与式观察。我们对访谈和观察结果进行了三角分析,并进行了主题分析。
我们得出了四个主题:1)“驾驭家庭护理身份和角色”:描述了在不同角色身份之间转换和管理相关期望的挑战;2)“发展和利用关系和情感技能”:照顾和情感投入之间的界限感到模糊且难以管理;3)“管理拒绝护理的客户”:家庭护理人员认为客户的反应具有挑战性,他们感到“孤立无援”,缺乏足够的培训;4)“利用代理和团队支持”:家庭护理工作可能会感到孤立无援,没有共享的工作场所、繁忙的日程安排和有限的同伴支持机会。
为家庭护理人员提供的培训和支持必须注重角色的关系、情感和基于权利的方面。在需要灵活、响应、以个人为中心的服务的情况下,需要相应的培训和支持,同时还需要考虑到家庭护理部门的更广泛背景,采取组织实践措施。