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冰岛北部农村地区癌症康复患者的体验:身体和心理社会健康、应对方式、生活质量和对护理的满意度。一项定性研究。

Experiences of cancer rehabilitation among patients in rural areas in northern Iceland: physical and psychosocial well-being, coping, quality of life, and satisfaction with care. A qualitative study.

机构信息

Department of Physiotherapy, Akureyri Regional Hospital, Akureyri, Iceland.

Department of Social Sciences, University of Akureyri, Akureyri, Iceland.

出版信息

Int J Circumpolar Health. 2021 Dec;80(1):1936974. doi: 10.1080/22423982.2021.1936974.

Abstract

Physical rehabilitation and psychosocial support are a part of cancer patients well-being and their ability to cope. Physical geography and healthcare provider barriers may have negative influences on patients' health outcomes. To explore the perceptions and experiences of cancer rehabilitation in a rural area in northern Iceland. A further aim was to explore patients' physical and psychosocial well-being, coping and satisfaction with care. A qualitative study using semi-structured interviews and thematic analysis was completed with a purposive sample of 21 patients at a tertiary hospital in northern Iceland. Three main themes emerged: 1) Rehabilitation - the need for improved access support and continuity; 2) Coping and quality of life balancing life as it was before cancer against the present situation in order to achieve normality; 3) Satisfaction - encountering caring behaviours enhances satisfaction and well-being. Specifically targeted rehabilitation programmes need to be included in the treatment options for cancer patients. Survival instinct, coping mechanisms and a strong urge to maintain general functionality are of paramount importance intertwined with patients' ability to cope with the disease and treatment, and their satisfaction with care.

摘要

身体康复和心理社会支持是癌症患者幸福感及其应对能力的一部分。自然地理和医疗保健提供者的障碍可能对患者的健康结果产生负面影响。本研究旨在探索冰岛北部农村地区癌症康复的认知和体验。进一步的目标是探讨患者的身体和心理社会福祉、应对和对护理的满意度。在冰岛北部的一家三级医院,采用半结构式访谈和主题分析的定性研究方法,对 21 名患者进行了有针对性的抽样。出现了三个主要主题:1)康复 - 需要改善获得支持和连续性;2)应对和生活质量 - 平衡癌症前的生活和现在的情况,以实现正常化;3)满意度 - 遇到关怀行为会提高满意度和幸福感。专门针对康复的方案需要纳入癌症患者的治疗选择中。生存本能、应对机制和保持一般功能的强烈愿望至关重要,与患者应对疾病和治疗的能力以及对护理的满意度交织在一起。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ae82/8204953/476943d9bd1c/ZICH_A_1936974_F0001_OC.jpg

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