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全科医生必须掌握与自闭症谱系障碍儿童沟通的技能,以重新获得他们在随访中的价值和角色 - 现象学研究。

General practitioners must acquire skills to communicate with child with Autism Spectrum Disorder to regain their values and role in the follow-up - phenomenological study.

机构信息

Department of General Practice, Montpellier University, Montpellier, France.

Institut Desbrest d'Epidémiologie et de Santé Publique (IDESP), Montpellier University, Montpellier, France.

出版信息

Scand J Prim Health Care. 2021 Jun;39(2):214-221. doi: 10.1080/02813432.2021.1913905. Epub 2021 Jun 21.

DOI:10.1080/02813432.2021.1913905
PMID:34154487
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8293969/
Abstract

OBJECTIVE

To understand the perceptions and attitudes of general practitioners (GPs) regarding children with an Autism Spectrum Disorder (ASD).

DESIGN

Phenomenological qualitative study.

SETTING

Three focus groups, clinical settings.

SUBJECTS

French GPs.

MAIN OUTCOME MEASURES

22 GPs took part in the study divided among three focus groups. They were volunteers to participate. Data were transcribed verbatim and analysed using a grounded theory data analysis, completed with a semiopragmatic analysis.

RESULTS

Representing autism as a strange disorder in the doctor-patient relationship, GPs perceive a loss of sensory contact with the child with ASD that prevents the usual professional relationship between doctor and patient. They disengage themselves from monitoring the subject, concentrating on supporting the family. According to them, their role was to refer the patient to a specialist in the case of clinical intuition, but they have several reasons to give themselves time, all the more so because once the diagnosis is made, they lose sight of the patient and their place in the care pathway. GPs expressed the need to acquire skills and strategies to communicate with the autistic child to recover their role and values.

CONCLUSION

GPs are disconcerted by the idea of communicating with children with ASD, as it takes them out of their usual professional benchmarks. They need communication tools that enable them to regain their role and relational value of the patient-centred approach. Beyond this, the question of the 'ethics of care' of the patient with a joint attention disorder is raised.KEY POINTSGPs are disconcerted with the idea of communicating with children with ASD.GPs need communication tools that enable them to regain their role and relational value of the patient-centred approach.The question of the 'ethics of care' of the patient with a joint attention disorder is raised.

摘要

目的

了解全科医生(GP)对自闭症谱系障碍(ASD)儿童的看法和态度。

设计

现象学定性研究。

地点

三个焦点小组,临床环境。

对象

法国全科医生。

主要观察指标

22 名全科医生参加了这项研究,分为三个焦点小组。他们是自愿参加的。数据逐字转录并使用扎根理论数据分析进行分析,辅以半语用分析。

结果

全科医生将自闭症视为医患关系中的一种奇怪障碍,他们认为自己与 ASD 儿童失去了感官接触,这阻碍了医生与患者之间的通常的专业关系。他们不再关注监测患者,而是专注于支持患者的家庭。根据他们的说法,他们的角色是在临床直觉的情况下将患者转介给专家,但他们有几个理由给自己时间,尤其是因为一旦做出诊断,他们就会忽略患者及其在护理路径中的位置。全科医生表示需要掌握与自闭症儿童交流的技能和策略,以恢复他们的角色和价值观。

结论

全科医生对与 ASD 儿童交流的想法感到不安,因为这使他们脱离了通常的专业基准。他们需要沟通工具,使他们能够恢复以患者为中心的方法的角色和关系价值。除此之外,还提出了共同注意力障碍患者的“关怀伦理”问题。

关键点

全科医生对与自闭症儿童交流的想法感到不安。全科医生需要沟通工具,使他们能够恢复以患者为中心的方法的角色和关系价值。共同注意力障碍患者的“关怀伦理”问题提出。

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Identifying and managing care for children with autism spectrum disorders in general practice: A systematic review and narrative synthesis.识别和管理一般实践中自闭症谱系障碍儿童的护理:系统评价和叙述性综合。
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