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成功应对生活挑战:来自脑瘫成年人的经验教训。

Successfully Negotiating Life Challenges: Learnings From Adults With Cerebral Palsy.

作者信息

Gaskin Cadeyrn J, Imms Christine, R Dagley Gavin, Msall Michael E, Reddihough Dinah

机构信息

Gaskin Research, Melbourne, Victoria, Australia.

The University of Melbourne, Parkville, Victoria, Australia.

出版信息

Qual Health Res. 2021 Oct;31(12):2176-2193. doi: 10.1177/10497323211023449. Epub 2021 Jun 24.

Abstract

Despite facing multidimensional inequalities, some adults with cerebral palsy achieve positive social outcomes (e.g., independent living, employment, and romantic relationships). We interviewed 23 adults (aged 23-47 years) about how they successfully negotiated the challenges of adulthood. Common to all life situations was (people without cerebral palsy) . Origins of success lay in their (e.g., typical parental expectations with commensurate support and acceptance and supported involvement in school life). Their (e.g., positive self-concept, well-honed social skills, and physical fitness) combined with (e.g., expectations of involvement in adult activities and accessible and accommodating environments) enabled them to find ways of negotiating challenges. included drawing on knowledge and skills, gravitating toward those who are comfortable with difference, maintaining function, and using natural and paid supports. The findings suggest multiple avenues for supporting people with cerebral palsy to achieve positive social outcomes.

摘要

尽管面临多方面的不平等,一些成年脑瘫患者仍取得了积极的社会成果(例如,独立生活、就业和恋爱关系)。我们采访了23名成年人(年龄在23至47岁之间),询问他们如何成功应对成年期的挑战。所有生活状况的共同点是(没有脑瘫的人)。成功的根源在于他们的(例如,典型的父母期望以及相应的支持和接纳,以及在学校生活中得到支持的参与)。他们的(例如,积极的自我概念、良好的社交技能和身体健康)与(例如,参与成人活动的期望以及无障碍和包容的环境)相结合,使他们能够找到应对挑战的方法。 包括利用知识和技能、向那些对差异感到自在的人靠拢、维持功能以及利用自然和付费支持。研究结果表明,有多种途径可以支持脑瘫患者取得积极的社会成果。

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