Gebhardt Anja, Langius-Eklöf Ann, Andermo Susanne, Arman Maria
Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, 14183, Huddinge, Sweden.
Department of Global Public Health, Karolinska Institutet, 17165, Solna, Sweden.
BMC Womens Health. 2021 Jun 26;21(1):259. doi: 10.1186/s12905-021-01398-y.
Despite women are generally overrepresented in behavioral, mental, and musculoskeletal disorders, motherhood as a central part of women's life is poorly understood in relation to exhaustion and long-lasting pain. Mothers' health impairments imply suffering both for herself and her family. A profound understanding of health is needed taking mothers' subjective health experience, their suffering and life situation into account to give women, their families and society better prerequisites to alleviate exhaustion and long-lasting pain. The aim of the study was to describe health and suffering of women and mothers undergoing rehabilitation for long-lasting pain and exhaustion and its correlation with perceived social support.
The study had a cross-sectional design with an exploratory approach. A main sample consisted of 166 women undergoing rehabilitation for exhaustion and long-lasting pain and a reference sample included 129 women working and studying within health care professions. Both samples included women with and without children. Women's subjective health and suffering was assessed from a caring science perspective using the recently developed and validated Health and Suffering Scale. Two additional scales measuring exhaustion and social support were distributed among the two samples. Descriptive statistics and multiple linear regression models, including health and suffering and perceived social support, were analyzed.
Mothers undergoing rehabilitation for pain and exhaustion reported significantly poorer health and more suffering compared to healthy mothers, but similar health and suffering when compared with childless women in rehabilitation. Health and suffering were correlated with perceived social support among both healthy and exhausted mothers. In both samples, the correlation between health and suffering and social support was stronger among mothers than among women without children.
Women and mothers living with exhaustion and long-lasting pain show signs of unbearable suffering and perceived insufficient social support. Social support from various sources particularly helps mothers to create meaning in life and make their suffering bearable. Hence, health care must address the fact that mothers are dependent on their immediate social environment and that this dependency interacts with their health and suffering on an existential level.
尽管女性在行为、心理和肌肉骨骼疾病方面的占比通常过高,但作为女性生活核心部分的母亲身份,在疲惫和长期疼痛方面却鲜为人知。母亲的健康受损意味着她自己和家人都要承受痛苦。需要深刻理解健康,将母亲的主观健康体验、她们的痛苦和生活状况考虑在内,以便为女性、其家庭和社会提供更好的条件来缓解疲惫和长期疼痛。本研究的目的是描述因长期疼痛和疲惫而接受康复治疗的女性和母亲的健康与痛苦状况,以及其与感知社会支持之间的相关性。
本研究采用探索性横断面设计。主要样本包括166名因疲惫和长期疼痛而接受康复治疗的女性,参考样本包括129名从事医疗保健行业工作和学习的女性。两个样本都包括有孩子和没有孩子的女性。从关怀科学的角度,使用最近开发并验证的健康与痛苦量表评估女性的主观健康和痛苦状况。在两个样本中还分发了另外两个测量疲惫和社会支持的量表。分析了描述性统计数据和多元线性回归模型,包括健康与痛苦以及感知社会支持。
与健康母亲相比,因疼痛和疲惫接受康复治疗的母亲报告的健康状况明显更差,痛苦更多,但与接受康复治疗的无子女女性相比,健康状况和痛苦程度相似。健康和痛苦与健康母亲和疲惫母亲的感知社会支持均相关。在两个样本中,母亲群体中健康与痛苦和社会支持之间的相关性比无子女女性群体更强。
患有疲惫和长期疼痛的女性和母亲表现出难以承受的痛苦迹象,且感知到社会支持不足。来自各种来源的社会支持尤其有助于母亲在生活中找到意义,并使她们的痛苦变得可以承受。因此,医疗保健必须认识到母亲依赖其直接的社会环境这一事实,并且这种依赖在生存层面上与她们的健康和痛苦相互作用。