Department of Engineering Systems and Environment, University of Virginia, Charlottesville, VA, United States; Department of Public Health Sciences, University of Virginia, Charlottesville, VA, United States.
Department of Public Health Sciences, University of Virginia, Charlottesville, VA, United States.
Patient Educ Couns. 2022 Mar;105(3):547-585. doi: 10.1016/j.pec.2021.06.017. Epub 2021 Jun 17.
The aim of this scoping review is to provide an overview of the existing research that investigates the lived experience during the peri-diagnostic period of breast cancer.
Nine databases were searched for relevant literature between January 2007 and April 2019. Data were extracted and categorized using deductive and inductive approaches.
A majority of the 66 studies included used qualitative methods to retrospectively explore the treatment decision making process of female breast cancer patients. Patients experienced uncertainty, emotional distress, and a need for more information from providers and relied on social support and family guidance during this period.
The results of this review show that the burdens experienced during the peri-diagnostic period parallel those in later periods of cancer care. However, these burdens are prompted by different circumstances. More research is needed to explore the lived experience during this period through the use of mixed-methods and by recruiting a diverse sample with regards to role in the breast cancer experience, age, gender, race, and ethnicity.
Interventions positioned at earlier points in the breast cancer experience should provide informational support, which could be delivered through shared decision making models. Additional support could be facilitated by patient navigation programs and health information technology.
本范围综述旨在概述现有研究，这些研究调查了乳腺癌诊断前期间的患者体验。
在 2007 年 1 月至 2019 年 4 月期间，对 9 个数据库进行了相关文献检索。使用演绎和归纳方法提取和分类数据。
66 项研究中，大多数采用定性方法回顾性探讨女性乳腺癌患者的治疗决策过程。患者在此期间经历了不确定性、情绪困扰，需要从提供者那里获得更多信息，并依赖社会支持和家庭指导。
本综述结果表明，诊断前期间经历的负担与癌症护理后期的负担相似。然而，这些负担是由不同的情况引起的。需要更多的研究通过使用混合方法，并通过招募在乳腺癌体验中角色、年龄、性别、种族和民族方面具有多样性的样本，来探索这一时期的患者体验。
在乳腺癌体验的早期阶段定位的干预措施应提供信息支持，这可以通过共同决策模型来实现。可以通过患者导航计划和健康信息技术来提供额外的支持。
