Department of Pediatrics, School of Medicine, Kyungpook National University, Daegu, Republic of Korea.
College of Nursing, Research Institute of Nursing Science, Kyungpook National University, Daegu, Republic of Korea.
Inquiry. 2021 Jan-Dec;58:469580211028580. doi: 10.1177/00469580211028580.
A good death is an important concept in pediatric palliative care. To improve the quality of pediatric palliative care, it is imperative to identify which domain is most important for a good death among children with cancer and their parents. This study aimed to (1) assess the essential domains for a good death from the perspectives of parents whose children have cancer using the Good Death Inventory (GDI) and (2) examine which characteristics are associated with the perception of a good death. An anonymous cross-sectional questionnaire was administered to 109 parents of children with cancer. Data were collected using a validated Korean version of the GDI. Descriptive statistics, -test, and ANOVA were used to identify the preferred GDI domains. Multiple linear regression analysis was performed to identify factors associated with the GDI scores. The most essential domains for a good death included "maintaining hope and pleasure" and "being respected as an individual." The factors most strongly associated with the perception of a good death were end-of-life plan discussion with parents or others and parental agreement with establishing a living will. Encouraging families to discuss end-of-life care and establish a living will in advance can improve the quality of death among children with cancer.
善终是儿童舒缓疗护中的一个重要概念。为了提高儿童舒缓疗护的质量，必须确定癌症患儿及其父母认为何种领域对善终最重要。本研究旨在：(1) 使用善终量表（Good Death Inventory，GDI）评估癌症患儿父母眼中的善终必备领域；(2) 探究与善终认知相关的特征。采用匿名横断面问卷调查法，对 109 名癌症患儿的父母进行调查。采用经验证的 GDI 韩语版收集数据。采用描述性统计、t 检验和 ANOVA 确定 GDI 首选领域。采用多元线性回归分析确定与 GDI 评分相关的因素。善终的最重要领域包括“保持希望和愉悦”以及“作为个体受到尊重”。与善终认知关系最密切的因素是与父母或他人讨论临终计划以及父母同意设立生前预嘱。鼓励家庭提前讨论临终护理并设立生前预嘱，可提高癌症患儿的死亡质量。
