Pérez-Cruz Pedro E, Padilla Pérez Oslando, Bonati Pilar, Thomsen Parisi Oliva, Tupper Satt Laura, Gonzalez Otaiza Marcela, Ceballos Yáñez Diego, Maldonado Morgado Armando
Departamento Medicina Interna, Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile; Programa Medicina Paliativa y Cuidados Continuos, Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.
Departamento Salud Pública, Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.
J Pain Symptom Manage. 2017 Jun;53(6):1042-1049.e3. doi: 10.1016/j.jpainsymman.2017.02.005. Epub 2017 Mar 16.
Improving quality of death (QOD) is a key goal in palliative care (PC). To our knowledge, no instruments to measure QOD have been validated in Spanish.
The goals of this study were to validate the Spanish version of the quality of dying and death (QODD) questionnaire and to develop and validate a shortened version of this instrument by phone interview.
We enrolled caregivers (CGs) of consecutive deceased cancer patients who participated in a single PC clinic. CGs were contacted by phone between 4 and 12 weeks after patients' death and completed the Spanish QODD (QODD-ESP). A question assessing quality of life during last week of life was included. A 12-item QODD (QODD-ESP-12) was developed. Reliability, convergent validity, and construct validity were estimated for both versions.
About 150 (50%) of 302 CGs completed the QODD-ESP. Patient's mean age (SD) was 67 (14); 71 (47%) were females, and 131 (87%) died at home. CGs' mean age (SD) was 51 (13); 128 (85%) were females. Mean QODD-ESP score was 69 (range 35-96). Kaiser-Meyer-Olkin measure of sampling adequacy was 0.322, not supporting the use of factorial analysis to assess the existence of an underlying construct. Mean QODD-ESP-12 score was 69 (range 31-97). Correlation with last week quality of life was 0.306 (P < 0.01). Confirmatory factorial analysis of QODD-ESP-12 showed that data fitted well Downey's four factors; Chi-square test = 6.32 (degrees of freedom = 60), P = 0.394 comparative fit index = 0.988; Tucker-Lewis Index = 0.987, and root mean square error of approximation = 0.016 (95% CI 0-0.052).
QODD-ESP-12 is a reliable and valid instrument with good psychometric properties and can be used to assess QOD in a Spanish-speaking cancer PC population by phone interview.
提高死亡质量（QOD）是姑息治疗（PC）的关键目标。据我们所知，尚无用于测量QOD的工具在西班牙语环境中得到验证。
本研究的目的是验证西班牙语版的死亡与临终质量（QODD）问卷，并通过电话访谈开发和验证该工具的简化版。
我们纳入了在一家单一的姑息治疗诊所就诊的连续已故癌症患者的照料者（CG）。在患者死亡后的4至12周内通过电话联系CG，并让他们完成西班牙语版QODD（QODD-ESP）。其中包括一个评估生命最后一周生活质量的问题。由此开发了一个12项的QODD（QODD-ESP-12）。对两个版本均评估了信度、收敛效度和结构效度。
302名CG中有约150名（50%）完成了QODD-ESP。患者的平均年龄（标准差）为67岁（14岁）；71名（47%）为女性，131名（87%）在家中死亡。CG的平均年龄（标准差）为51岁（13岁）；128名（85%）为女性。QODD-ESP的平均得分是69分（范围35 - 96分）。Kaiser-Meyer-Olkin抽样适当性度量为0.322，不支持使用因子分析来评估潜在结构的存在。QODD-ESP-12的平均得分是69分（范围31 - 97分）。与生命最后一周生活质量的相关性为0.306（P < 0.01）。对QODD-ESP-12的验证性因子分析表明，数据与唐尼的四个因子拟合良好；卡方检验 = 6.32（自由度 = 60），P = 0.394，比较拟合指数 = 0.988；塔克 - 刘易斯指数 = 0.987，近似均方根误差 = 0.016（95%置信区间0 - 0.052）。
QODD-ESP-12是一种可靠且有效的工具，具有良好的心理测量特性，可通过电话访谈用于评估讲西班牙语的癌症姑息治疗人群的QOD。
