Fereidouni Zhila, Kamyab Amir Hossein, Dehghan Azizallah, Khiyali Zahra, Ziapour Arash, Mehedi Nafiul, Toghroli Razie
Department of Medical-Surgical Nursing, School of Nursing, Fasa University of Medical Sciences, Fasa, Iran.
Department of Medicine, Fasa University of Medical Sciences, Fasa, Iran.
Heliyon. 2021 Jun 11;7(6):e07285. doi: 10.1016/j.heliyon.2021.e07285. eCollection 2021 Jun.
Mothers who take care of their disabled children usually suffer from several problems, such as physical, psychological, and social problems. The disability of children can also directly impress the quality of their mothers' lives. This study is going to check out how the disability of children affects the quality of life of the mothers.
This study was conducted to compare the quality of life and resilience of mothers with disabled and typically developed children in Fasa, Iran.
The subjects of this cross-sectional study were 240 mothers (120 mothers having disabled children and 120 mothers with typically developed children) referring to Fasa State Health Centers and Fasa State Welfare Office. They were randomly selected and included in the study. All samples were collected by the convenience sampling method. The data were collected by using the World Health Organization Quality-of-Life Scale (WHOQOL-BREF) and the Connor-Davidson Resilience Scale (CD-RISC). The collected data were then analyzed by the SPSS (v.22) software. The results of the descriptive statistics, Chi-square, independent t-test, and Pearson correlation coefficient were at a significant value of P < 0.05.
The mean score of quality of life of mothers with disabled children on physical, psychological, social, and environmental domains was lower than that of mothers with neurotypically and statistically significant (p < 0.05); however, the mean scores on the resilience of mothers in both groups were not significantly different (p = 0.43).The results of the linear regression analysis showed that, having a disabled child (P < 0.001, t = 10.141), level of education (P < 0.001, t = 2.031), and resilience (P < 0.001, t = 8.205) affect the quality of life. The lower the education level is, the lower the quality of life. And higher resilience increases the quality of life.
The quality of life of mothers with disabled children was lower compared to mothers with typically developed children, but there was no difference between mothers' resiliency in these two groups. These results suggest the necessity to provide supportive and therapeutic programs for improving the quality of life of mothers with disabled children.
照顾残疾子女的母亲通常会面临一些问题，如身体、心理和社会问题。子女的残疾也会直接影响其母亲的生活质量。本研究旨在探讨子女残疾如何影响母亲的生活质量。
本研究旨在比较伊朗法萨市残疾儿童母亲与发育正常儿童母亲的生活质量和心理韧性。
本横断面研究的对象为240名母亲（120名残疾儿童母亲和120名发育正常儿童母亲），她们来自法萨市卫生中心和法萨市福利办公室。她们是随机选取并纳入研究的。所有样本均采用便利抽样法收集。数据通过使用世界卫生组织生活质量量表（WHOQOL-BREF）和康纳-戴维森心理韧性量表（CD-RISC）收集。然后使用SPSS（v.22）软件对收集到的数据进行分析。描述性统计、卡方检验、独立t检验和皮尔逊相关系数的结果在P < 0.05时具有显著性。
残疾儿童母亲在身体、心理、社会和环境领域的生活质量平均得分低于发育正常儿童的母亲，且具有统计学意义（p < 0.05）；然而，两组母亲的心理韧性平均得分没有显著差异（p = 0.43）。线性回归分析结果表明，有残疾子女（P < 0.001，t = 10.141）、教育水平（P < 0.001，t = 2.031）和心理韧性（P < 0.001，t = 8.205）会影响生活质量。教育水平越低，生活质量越低。心理韧性越高，生活质量越高。
与发育正常儿童的母亲相比，残疾儿童母亲的生活质量较低，但两组母亲的心理韧性没有差异。这些结果表明有必要提供支持性和治疗性项目，以提高残疾儿童母亲的生活质量。
