Vieille Margaux, Dany Lionel, Coz Pierre Le, Avon Sophie, Keraval Charlotte, Salas Sébastien, Bernard Cécile
Aix-Marseille Université, LPS, Aix-en-Provence, France.
APHM, Timone, Service d'Oncologie Médicale, Marseille, France.
Palliat Med Rep. 2021 May 24;2(1):160-167. doi: 10.1089/pmr.2021.0022. eCollection 2021.
Palliative care teams face complex medical situations on a daily basis. These situations require joint reflection and decision making to propose appropriate patient care. Sometimes, sedation is one of the options to be considered. In addition to medical and technical criteria justifying the use of sedation, multiple psychosocial criteria impact the decision making of palliative care teams and guide, give sense to, and legitimize professional practices. The main goal of this study was to explore perceptions, experiences, and beliefs of palliative care teams about sedation practices in a legislative context (Claeys-Leonetti law, 2016; France), which authorizes continuous deep sedation (CDS) until death. This is a qualitative study using 28 semistructured interviews with physicians and nurses working in a palliative care team in France (PACA region). All verbal productions produced during interviews were fully transcribed and the contents analyzed. Content analysis revealed four themes: (1) sedation as a "good death," (2) emotional experiences of sedations, (3) the practice of CDS, and (4) the ambiguous relationship with the Claeys-Leonetti law. This qualitative study provides evidence of a form of "naturalization" of the practice of sedation. However, the Claeys-Leonetti law exacerbates differences of opinion between palliative caregivers on sedation and questions the interest of this law for society and palliative care practices. clinicalTrials.gov identifier: NCT04016038.
姑息治疗团队每天都面临复杂的医疗情况。这些情况需要共同思考和决策,以提出适当的患者护理方案。有时,镇静是需要考虑的选择之一。除了证明使用镇静的医学和技术标准外,多种社会心理标准也会影响姑息治疗团队的决策,并指导、赋予专业实践意义并使其合法化。本研究的主要目的是探讨姑息治疗团队在立法背景下(2016年法国《克莱伊斯 - 莱奥内蒂法》)对镇静实践的看法、经验和信念,该法律授权持续深度镇静(CDS)直至死亡。这是一项定性研究,对法国普罗旺斯 - 阿尔卑斯 - 蓝色海岸大区一个姑息治疗团队的医生和护士进行了28次半结构化访谈。访谈期间产生的所有口头表述都被完整转录并进行内容分析。内容分析揭示了四个主题:(1)镇静作为“善终”,(2)镇静的情感体验,(3)持续深度镇静的实践,以及(4)与《克莱伊斯 - 莱奥内蒂法》的模糊关系。这项定性研究提供了镇静实践一种“自然化”形式的证据。然而,《克莱伊斯 - 莱奥内蒂法》加剧了姑息治疗人员在镇静问题上的意见分歧,并对该法律对社会和姑息治疗实践的意义提出了质疑。ClinicalTrials.gov标识符:NCT04016038。