End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB), 1090 Brussels, Belgium.
End-of-Life Care Research Group, Ghent University, 9000 Ghent, Belgium.
Int J Environ Res Public Health. 2022 Apr 30;19(9):5472. doi: 10.3390/ijerph19095472.
As previous research has paid little attention to environmental factors affecting the practice of continuous deep sedation until death (CDS), we aimed to explore these using physicians' experiences and perceptions. We performed an interpretative thematic analysis of primary data from a qualitative interview study conducted from February to May 2019 in Belgium with 47 physicians. Structural factors were identified: the lack of professional and/or technical support in monitoring sedated patients; the use of guidelines in team contexts; the time constraints for treating individual patients and work pressure; the structural knowledge gap in medical education; the legal context for assisted dying; and the lack of a clear legal context for CDS. Cultural factors were identified: the moral reservations of care teams and/or institutions towards CDS; the presence of a palliative care culture within care teams and institutions; the culture of fear of making clinical errors regarding CDS among a group of physicians; the professional stigma of performing assisted dying among some of the physician population; the different understandings of CDS in medical and policy fields; and the societal taboo around suffering at the end of life and natural death. To conclude, improving CDS practice requires a whole-system approach considering environmental factors.
由于先前的研究很少关注影响持续深度镇静直至死亡(CDS)实践的环境因素,我们旨在通过医生的经验和看法来探讨这些因素。我们对 2019 年 2 月至 5 月在比利时进行的一项定性访谈研究的主要数据进行了解释性主题分析,该研究涉及 47 名医生。确定了结构因素:监测镇静患者缺乏专业和/或技术支持;在团队环境中使用指南;治疗个体患者和工作压力的时间限制;医学教育中的结构性知识差距;协助死亡的法律背景;以及 CDS 的法律背景不明确。还确定了文化因素:护理团队和/或机构对 CDS 的道德保留;护理团队和机构中存在姑息治疗文化;一组医生对 CDS 存在临床错误的恐惧文化;一些医生群体中进行协助死亡的职业耻辱;医疗和政策领域对 CDS 的不同理解;以及在生命尽头和自然死亡方面对痛苦的社会禁忌。总之,要改善 CDS 实践,需要考虑环境因素的整体系统方法。