Department of Educator Preparation and Leadership, University of Missouri-St. Louis, St. Louis, MO, USA.
Department of Advanced Studies in Education and Counseling, California State University-Long Beach, Long Beach, CA, USA.
J Intellect Disabil Res. 2021 Sep;65(9):849-862. doi: 10.1111/jir.12864. Epub 2021 Jul 7.
Although attention has been devoted to social supports provided by parents and siblings of adults with intellectual and developmental disabilities (IDD), much less is known about supports provided by the spouses of these siblings-the so-called siblings-in-law. This study examined the role of the sibling-in-law in the social support networks of their brother/sister-in-law with IDD and factors associated with providing greater amounts of tangible, informational and emotional support.
Siblings-in-law of adults with IDD living predominately in the United States (N = 99) participated in a cross-sectional survey. Measures covered demographic and family background, perspectives towards having a brother/sister-in-law with IDD, supports provided and characteristics of the adult with IDD's social support network.
Most siblings-in-law reported providing support to their brother/sister-in-law with IDD. Percentages of siblings-in-law providing support were similar to that of the spouse and the spouse's family in the area of emotional support and similar to percentages of paid professionals in tangible and informational supports. Across all three support types, the main predictor of increased sibling-in-law support levels was a decreased ability of the parents-in-law to care for their child with IDD. Other predictors (e.g. distance from brother/sister-in-law with IDD and disability 'insider' status) varied by support type.
Findings highlight the role of siblings-in-law in the social support networks of adults with IDD, with implications for policy and practice.
尽管人们关注的是智障和发育障碍(ID)成年人的父母和兄弟姐妹提供的社会支持,但对于这些兄弟姐妹的配偶(即所谓的姻亲)提供的支持却知之甚少。本研究考察了姻亲在智障兄弟姐妹的社会支持网络中的角色,以及与提供更多有形、信息和情感支持相关的因素。
居住在美国的智障成年人的姻亲(N=99)参与了横断面调查。测量包括人口统计学和家庭背景、对有智障兄弟姐妹的看法、提供的支持以及智障成年人社会支持网络的特征。
大多数姻亲表示向智障兄弟姐妹提供支持。在情感支持方面,姻亲提供支持的比例与配偶和配偶的家人相似,在有形和信息支持方面与付费专业人员的比例相似。在所有三种支持类型中,姻亲支持水平增加的主要预测因素是姻亲父母照顾智障子女的能力下降。其他预测因素(例如,与智障兄弟姐妹的距离和残疾“内部人士”身份)因支持类型而异。
研究结果强调了姻亲在智障成年人社会支持网络中的作用,对政策和实践具有启示意义。