National Health Laboratory Service (NHLS), Biobank, 25 Hospital Street, Constitution Hill, Johannesburg, South Africa.
Steve Biko Centre for Bioethics, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
Med Health Care Philos. 2021 Dec;24(4):667-675. doi: 10.1007/s11019-021-10042-3. Epub 2021 Jul 20.
It is common practice for biobanks and biobank researchers to seek funding from agencies that are independent of the biobank that often stipulate conditions requiring researchers to grant access and share biomaterials and data as part of the agreement, in particular, in international collaborative health research. As yet, to the author's knowledge, there has been no study conducted to examine whether these conditions could result in the commercialization of biomaterials and data and whether such practice is considered ethical. This paper therefore seeks to answer the question of whether such sharing of biomaterials and data for biobank research in exchange for funding from sponsors and funders in collaborative health research is ethically justified. The central idea of this paper is based on an argument against commodification of the body and its parts, which includes biomaterials and data and holds that it is ethically wrong to commodify humans and their body parts. The arguments against commodification of biomaterials and data explored are the Kantian approach argument as it relates to interference of commodification with human dignity which is linked to a diminished sense of personhood, an argument against commodification that is based on a dilution of altruism and lastly the communitarian approach anti-commodification argument which emphasizes a social responsibility to the common good. Arguments in support of commodification based on liberal individualism and consequentialism are also discussed.
生物银行及其研究人员通常寻求独立于生物银行的机构提供资金,并作为协议的一部分规定条件,要求研究人员授予访问权并共享生物材料和数据,特别是在国际合作健康研究中。然而,据作者所知,尚未有研究检查这些条件是否会导致生物材料和数据的商业化,以及这种做法是否被认为是合乎道德的。因此,本文旨在回答以下问题:以换取合作健康研究的赞助商和资助者的资金,为生物银行研究而共享生物材料和数据,在伦理上是否合理。本文的核心思想基于反对将身体及其部分(包括生物材料和数据)商品化的论点,并认为将人类及其身体部分商品化在伦理上是错误的。本文探讨了反对生物材料和数据商品化的论点,包括与商品化干扰人类尊严相关的康德主义方法论点,这与人格感的降低有关;基于利他主义稀释的反对商品化论点;最后是强调对共同利益的社会责任的共同体主义方法反商品化论点。本文还讨论了基于自由个人主义和后果主义的支持商品化的论点。