Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.
Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.
J Pediatr Nurs. 2022 Jan-Feb;62:164-170. doi: 10.1016/j.pedn.2021.07.012. Epub 2021 Jul 20.
Our goal was to explore parental views on the challenges and stressors of transition to young adulthood for adolescents with type 1 diabetes and to describe specific strategies used to reduce parents' own stress during this time.
Focus groups with 39 parents of adolescents with type 1 diabetes were conducted in the greater Seattle area. Semi-structured prompts addressed adolescents' self-care tasks, parental assistance with care, challenges and barriers with self-care tasks, and stress/pressure around self-care. Data was analyzed using qualitative methods for emerging themes.
Parental stress was heightened when adolescents were approaching common developmental milestones such as driving, moving out, and engaging in risky behaviors that could be exacerbated by poor diabetes management. Thus, most parents reported providing assistance even late into adolescence. Parents shared strategies for guiding adolescents' transition from assisted to independent care with an emphasis on active behaviors parents could continue, thereby lowering their own stress.
Parents of adolescents with type 1 diabetes experienced significant stress around their children's transition to independent diabetes self-care management.
As part of overall preparation for transition, care providers should be encouraged to communicate with parents about these common stressors and promising avenues for nurturing a teen's independence.
我们的目的是探讨父母对 1 型糖尿病青少年向成年早期过渡所面临的挑战和压力的看法，并描述在此期间用于减轻父母自身压力的具体策略。
在西雅图大都市区进行了 39 名 1 型糖尿病青少年父母的焦点小组。半结构化提示涉及青少年的自我护理任务、父母对护理的协助、自我护理任务的挑战和障碍，以及自我护理的压力/紧张。使用定性方法分析数据以得出新的主题。
当青少年接近共同的发展里程碑时，例如驾驶、搬出去和从事可能因糖尿病管理不善而加剧的危险行为时，父母的压力会增加。因此，大多数父母报告说即使在青少年后期也提供帮助。父母分享了指导青少年从辅助到独立护理过渡的策略，重点是父母可以继续采取的积极行为，从而降低他们自己的压力。
1 型糖尿病青少年的父母在孩子过渡到独立的糖尿病自我护理管理时经历了很大的压力。
作为过渡准备的一部分，应鼓励护理提供者与父母沟通这些常见的压力源，并探讨培养青少年独立性的有希望的途径。
