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基于自我调节的通情模型对老年亚洲成年人慢性瘙痒症的疾病认知的定性研究。

A qualitative research study on the illness perception of chronic pruritus in older Asian adults based on the Common-Sense Model of self-regulation.

机构信息

SingHealth Polyclinics, Singapore, Singapore.

SingHealth-Duke NUS Family Medicine Academic Clinical Programme, Singapore, Singapore.

出版信息

Health Expect. 2021 Oct;24(5):1801-1811. doi: 10.1111/hex.13320. Epub 2021 Jul 26.

Abstract

BACKGROUND

Chronic pruritus (CP), itch lasting more than 6 weeks, is common in community-dwelling older adults. Understanding their illness perception allows the attending physician to develop a personalised care plan to mitigate CP.

AIM

This study explores the illness perception of CP among older Asian adults in an urban community.

DESIGN

Qualitative research was conducted, framed by the Common-Sense Model of self-regulation (CSM). Through in-depth interviews (IDIs), qualitative data were gathered from Asian patients with CP, and then a thematic analysis was carried out. The emergent themes were grouped according to the five domains of CSM: 'identity', 'cause', 'time', 'controllability' and 'consequence'.

SETTING AND PATIENTS

IDIs were conducted in a Singapore public primary care clinic before the data were saturated.

RESULTS

The CSM domains illustrate the illness perception of CP. CP was identified as a 'problem' rather than a disease and was often described in metaphor. Patients' perception of the cause was diverse due to the lack of provision of a clear explanation by their physicians. They opined that CP continued indefinitely. Without definite time to resolution, patients adapted their help- and health-seeking behaviours to control it. The consequences included therapeutic experimentation, alternative therapy, self-isolation, avoidance behaviours, emotional disturbance and dermatological complications.

CONCLUSION AND PATIENT CONTRIBUTION

Patients provided information on their perception of CP, which aligned with the CSM. A multipronged approach is needed to deliver holistic and personalised care to patients with CP, providing clarity on its natural progression, to set their expectations on its timeline, treatment effectiveness and undertake appropriate behaviour modification to adapt to its chronicity.

摘要

背景

慢性瘙痒症(CP)是一种常见于社区居住的老年人群中的持续性瘙痒,持续时间超过 6 周。了解患者对疾病的认知,有助于临床医生为患者制定个性化的护理计划,以减轻 CP 的症状。

目的

本研究旨在探讨城市社区中亚洲老年患者对 CP 的疾病认知。

设计

本研究采用定性研究方法,基于自我调节的常识模型(CSM)框架。通过深入访谈(IDIs),从患有 CP 的亚洲患者中收集定性数据,并进行主题分析。根据 CSM 的五个领域:“身份”、“病因”、“时间”、“可控性”和“后果”,对出现的主题进行分组。

地点和患者

在数据达到饱和之前,在新加坡的一家公立基层医疗诊所进行 IDIs。

结果

CSM 各领域反映了 CP 的疾病认知。CP 被视为一种“问题”,而非一种疾病,且常被比喻性地描述。由于医生未能提供明确的病因解释,患者对病因的认知存在差异。他们认为 CP 会无限期持续。由于缺乏明确的缓解时间,患者会调整他们的求助和就医行为来控制 CP。CP 的后果包括治疗性试验、替代疗法、自我隔离、回避行为、情绪困扰和皮肤并发症。

结论和患者贡献

患者提供了他们对 CP 的认知信息,这与 CSM 一致。需要采取多管齐下的方法,为 CP 患者提供全面和个性化的护理,明确其自然进程,使他们了解 CP 的时间、治疗效果和预期,并进行适当的行为改变以适应其慢性病程。

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