Baumann-Vogel Heide, Bodenmann Guy, Schmid Jonas, Waldvogel Daniel, Ineichen Christian, Baumann Christian R
Department of Neurology, University Hospital Zurich, Zurich, Switzerland.
University Hospital of Psychiatry Zurich, Zurich, Switzerland.
Clin Park Relat Disord. 2020 Apr 14;3:100052. doi: 10.1016/j.prdoa.2020.100052. eCollection 2020.
After deep brain stimulation (DBS) of the subthalamic nucleus (STN), Parkinson patients report difficulties in the relationship with their partners. The partners' experience after DBS appears to be variable and complex. Purpose of this pilot study was to investigate the partners' perspective on the relationship following STN-DBS.
We conducted a postoperative questionnaire assessment in 56 partners of Parkinson patients with STN-DBS, using questionnaires addressing partnership satisfaction, dyadic coping, and role allocation in duties and activities of daily living.
Regarding overall relationship satisfaction after surgery, 40% of partners were happier with their relationship than before DBS, and 14% were less satisfied. Partners reported that patients involved themselves distinctly less in duties and activities of daily living, leaving partners to take over. A need for more professional support for the relationship following surgery was noted by 27% of the partners.
Although quality of relationship and dyadic coping improved or remained unchanged according to the majority of partners, patients became less prone to take over common duties and activities despite being in a better and more stable motor state. Potential conflicts and problems in role allocation in relationships following DBS need to be addressed in patients care.
在对丘脑底核(STN)进行脑深部电刺激(DBS)后,帕金森病患者表示与伴侣的关系出现问题。DBS后伴侣的体验似乎各不相同且复杂。这项初步研究的目的是调查伴侣对STN-DBS后关系的看法。
我们对56名患有STN-DBS的帕金森病患者的伴侣进行了术后问卷调查,使用了关于伴侣关系满意度、二元应对以及日常生活职责和活动中的角色分配的问卷。
关于术后整体关系满意度,40%的伴侣对他们的关系比DBS前更满意,14%的伴侣满意度较低。伴侣们报告说,患者在日常生活职责和活动中的参与明显减少,让伴侣来接管。27%的伴侣指出术后需要更多专业的关系支持。
尽管大多数伴侣认为关系质量和二元应对有所改善或保持不变,但患者尽管处于更好、更稳定的运动状态,却变得不太愿意承担共同的职责和活动。DBS后关系中潜在的角色分配冲突和问题需要在患者护理中加以解决。