Tomkiewicz S
INSERM, unité 69, Montrouge, France.
Pediatrie. 1987;42(5):375-82.
Based on personal experience and the results of a survey among 78 families, the author analyses the psychological, social and economical consequences of severe mental retardation for the parents of the sick child. The most important consequences are psychological and socio-economic: guilt feelings, social isolation and risk of parental separation. The disclosure of the child's handicap yields to various reactions: psychological shock at first, then denial of the handicap, depression, followed in some parents with acceptance and fear for the future of their child after their own death.
基于个人经验以及对78个家庭的调查结果,作者分析了重度智力障碍给患病儿童父母带来的心理、社会和经济后果。最重要的后果是心理和社会经济方面的:内疚感、社会孤立以及父母分居的风险。孩子残疾情况的披露会引发各种反应:起初是心理冲击,接着是否认残疾,然后是抑郁,一些父母随后会接受现实,并为自己死后孩子的未来感到担忧。