Bristol Medical School, University of Bristol, Bristol, UK.
Bristol Medical School, University of Bristol, Bristol, UK; Renal Unit, Southmead Hospital, Bristol, UK.
Semin Nephrol. 2021 May;41(3):262-271. doi: 10.1016/j.semnephrol.2021.05.007.
When providing care, nephrologists are subject to various ethical duties. Beyond the Hippocratic notion of doing no harm, nephrologists also have duties to respect their patients' autonomy and dignity, to meet their patients' care goals in the least invasive way, to act impartially, and, ultimately, to do what is (clinically) beneficial for their patients. Juggling these often-conflicting duties can be challenging at the best of times, but can prove especially difficult when patients are not fully adherent to treatment. When a patient's nonadherence begins to cause harm to themselves and/or others, it may be questioned whether discontinuation of care is appropriate. We discuss how nephrologists can meet their ethical duties when faced with nonadherence in patients undergoing hemodialysis, including episodic extreme agitation, poor renal diet, missed hemodialysis sessions, and emergency presentations brought on by nonadherence. Furthermore, we consider the impact of cognitive impairment and provider-family conflict when making care decisions in a nonadherence context, as well as how the coronavirus disease 2019 pandemic might affect responses to nonadherence. Suggestions are provided for ethically informed responses, prioritizing a patient-narrative approach that is attentive to patients' values and preferences, multidisciplinarity, and the use of behavioral contracts and/or technology where appropriate.
在提供医疗服务时,肾脏病学家承担着各种道德义务。除了希波克拉底式的不伤害原则外,肾脏病学家还负有尊重患者自主权和尊严、以对患者创伤最小的方式满足其治疗目标、公平行事的义务,最终还要为患者的利益(临床)而行事。在最好的情况下,平衡这些经常相互冲突的义务可能具有挑战性,但当患者不完全遵守治疗方案时,这可能会尤其困难。当患者的不依从行为开始对自身和/或他人造成伤害时,可能会质疑是否应停止治疗。我们将讨论肾脏病学家在面对接受血液透析治疗的患者不依从的情况下,如何履行其道德义务,包括偶发性极度激越、肾功能饮食不佳、错过血液透析治疗、以及不依从导致的紧急就诊等情况。此外,我们还考虑了在不依从的情况下做出治疗决策时认知障碍和医患冲突的影响,以及 2019 冠状病毒病大流行可能如何影响对不依从的反应。为了提供符合伦理的回应,我们提出了一些建议,包括注重患者价值观和偏好的患者叙述方法、多学科方法以及在适当情况下使用行为契约和/或技术。