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波兰不安腿综合征患者的治疗满意度和支付意愿。

Therapy satisfaction and willingness-to-pay in Polish patients with restless legs syndrome.

机构信息

Department of Emergency Medicine, Medical University of Gdansk, Smoluchowskiego 17 , 80-214, Gdansk, Poland.

Department of Neurological-Psychiatric Nursing, Medical University of Gdansk, Skłodowskiej-Curie 3a, 80-210, Gdansk, Poland.

出版信息

Sleep Breath. 2022 Jun;26(2):839-846. doi: 10.1007/s11325-021-02440-x. Epub 2021 Aug 1.

Abstract

PURPOSE

Restless legs syndrome (RLS) is a serious burden for patients which can be measured in economic terms by assessing the money spent on therapy and the willingness to pay. The aim of this study was to assess whether or not patients feel satisfied with the therapy relative to the money they spent on the treatment, and to assess patients' willingness to pay for therapy that fully eliminates all RLS symptoms.

METHODS

Adult subjects with RLS confirmed by actual international consensus criteria, a positive RLS-Diagnostic Index (RLS-DI) score, and clinical examinations and observations were assessed to generate a disease severity index. An original set of questions was used to collect data on patient satisfaction with therapy and their willingness to pay.

RESULTS

Among 100 subjects, 27% were not satisfied with therapy; this subgroup was characterized by lower indices of severity of the disease. Patients spent approximately 3% of their income in treating RLS. They are willing to pay up to 8.3% of their income to eliminate symptoms.

CONCLUSIONS

The cost of RLS therapy is a significant part of patient expenditure. Nevertheless, RLS may at times remain so troublesome for patients that they are willing to spend more on therapy to eliminate symptoms.

摘要

目的

不宁腿综合征(RLS)给患者带来了严重的负担,可以通过评估治疗费用和支付意愿来从经济角度衡量。本研究旨在评估患者对治疗的满意度与他们为治疗所花费的费用之间的关系,以及评估患者对能完全消除所有 RLS 症状的治疗的支付意愿。

方法

根据实际的国际共识标准、阳性 RLS-Diagnostic Index (RLS-DI) 评分以及临床检查和观察结果,对确诊为 RLS 的成年患者进行评估,以生成疾病严重程度指数。采用一套原始问题收集患者对治疗的满意度和支付意愿的数据。

结果

在 100 名患者中,有 27%的患者对治疗不满意;该亚组的疾病严重程度指数较低。患者治疗 RLS 的费用约占其收入的 3%。他们愿意支付高达其收入的 8.3%来消除症状。

结论

RLS 治疗费用是患者支出的重要组成部分。然而,RLS 有时会给患者带来如此大的困扰,以至于他们愿意花费更多的治疗费用来消除症状。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/326e/9130188/68fa521e42a7/11325_2021_2440_Fig1_HTML.jpg

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