Washington University School of Medicine, St. Louis, MO.
Howard Head Sports Medicine, Vail, CO.
Arch Phys Med Rehabil. 2021 Dec;102(12):2353-2361. doi: 10.1016/j.apmr.2021.05.021. Epub 2021 Jul 30.
To identify the proportion of hospitals/clinics in the United States (US) that have a comprehensive pediatric oncology rehabilitation program and characterize current practices.
Cross-sectional survey of rehabilitation providers in the US and internationally.
Electronic or telephone survey.
Rehabilitation or supportive care practitioners employed at a hospital, outpatient clinic, or medical university (N=231).
Electronic and telephone survey. The full electronic survey contained 39 questions, provided opportunities for open-ended responses, and covered 3 main categories specific to pediatric cancer rehabilitation: service delivery, rehabilitation program practices, and education/training. The short telephone survey included 4 questions from the full survey and was designed to answer the primary study objective.
Proportion of hospitals/clinics with a comprehensive pediatric oncology rehabilitation program.
This cohort includes rehabilitation providers from 191 hospitals/clinics, 49 states within the US, and 5 countries outside of the US. Of hospitals/clinics represented from the full and short survey, 145 (76%) do not have an established pediatric oncology rehabilitation program. Nearly half of full survey respondents reported no knowledge of the prospective surveillance model, and 65% reported no education was provided to them regarding pediatric cancer rehabilitation. Qualitative survey responses fell into 3 major themes: variability in approach to rehabilitation service delivery, program gaps, and need for additional educational opportunities.
There is evidence of limited comprehensive rehabilitation programming for children with cancer as demonstrated by the lack of programs with coordinated interdisciplinary care, variability in long-term follow-up, and absence of education and training. Research is needed to support the development and implementation of comprehensive pediatric oncology rehabilitation programs.
确定美国（US）拥有综合儿科肿瘤康复计划的医院/诊所的比例，并描述当前的实践情况。
对美国和国际康复提供者进行横断面调查。
电子或电话调查。
在美国的医院、门诊或医科大学工作的康复或支持性护理从业人员（N=231）。
电子和电话调查。完整的电子调查包含 39 个问题，提供了开放式回答的机会，并涵盖了儿科癌症康复的 3 个主要类别：服务提供、康复计划实践和教育/培训。简短的电话调查包括完整调查中的 4 个问题，旨在回答主要研究目标。
拥有综合儿科肿瘤康复计划的医院/诊所的比例。
本队列包括来自美国 49 个州的 191 家医院/诊所的康复提供者，以及美国以外的 5 个国家的康复提供者。来自完整和简短调查的医院/诊所中，有 145 家（76%）没有建立儿科肿瘤康复计划。几乎一半的完整调查受访者表示不了解前瞻性监测模式，65%的受访者表示没有接受过儿科癌症康复方面的教育。定性调查回复分为 3 个主要主题：康复服务提供方式的差异、计划差距和对额外教育机会的需求。
缺乏协调的跨学科护理、长期随访的差异以及缺乏教育和培训，表明儿童癌症的综合康复计划有限。需要开展研究以支持综合儿科肿瘤康复计划的制定和实施。
