Science, Technology and Innovation Studies, University of Edinburgh, Old Surgeon's Hall, High School Yards, Edinburgh, EH1 1LZ, UK.
University of Oxford, UK.
Soc Sci Med. 2021 Sep;285:114280. doi: 10.1016/j.socscimed.2021.114280. Epub 2021 Jul 29.
People increasingly provide feedback about healthcare services online. These practices have been lauded for enhancing patient power, choice and control, encouraging greater transparency and accountability, and contributing to healthcare service improvement. Online feedback has also been critiqued for being unrepresentative, spreading inaccurate information, undermining care relations, and jeopardising professional autonomy. Through a thematic analysis of 37 qualitative interviews, this paper explores the relationship between online feedback and care improvement as articulated by healthcare service users (patients and family members) who provided feedback across different online platforms and social media in the UK. Online feedback was framed by interviewees as, ideally, a public and, in many cases, anonymous 'conversation' between service users and healthcare providers. These 'conversations' were thought of not merely as having the potential to bring about tangible improvements to healthcare, but as in themselves constituting an improvement in care. Vital to this was the premise that providing feedback was an enactment of care - care for other patients, certainly, but also care for healthcare as such and even for healthcare professionals. Ultimately, feedback was understood as an enactment of care for the National Health Service (NHS), as symbolically encompassing all of the above. Putting these findings in dialogue with STS scholarship on care, we argue that, in this context, the provision of online feedback can be understood as a form of care that is, simultaneously, both directed at healthcare (in the round, including patients, professionals, services, organisations, and, of course, health itself) and part of healthcare. We conceptualise this as 'caring for care'. This conceptualization moves beyond dominant framings of online feedback in terms of 'choice' and 'voice'. It embeds online feedback within pre-existing healthcare systems, relations and moral commitments, foregrounds the mutuality of care relations, and draws attention to the affective labour of feedback practices.
人们越来越多地在网上提供医疗服务反馈。这些做法因其增强了患者的权力、选择和控制、鼓励更大的透明度和问责制以及有助于改善医疗服务而受到称赞。在线反馈也因其代表性不足、传播不准确信息、破坏护理关系和危及专业自主权而受到批评。通过对 37 份定性访谈的主题分析,本文探讨了英国不同在线平台和社交媒体上提供反馈的医疗服务用户(患者和家属)所表达的在线反馈与护理改善之间的关系。受访者认为,在线反馈最好是服务用户和医疗保健提供者之间的公开、在许多情况下是匿名的“对话”。这些“对话”不仅被认为有可能给医疗保健带来切实的改善,而且本身就构成了护理的改善。至关重要的是,提供反馈是一种护理行为的前提——当然,是为了其他患者的护理,但也是为了医疗保健本身的护理,甚至是为了医疗保健专业人员的护理。最终,反馈被理解为对国民保健制度(NHS)的护理行为,象征性地包含了上述所有内容。将这些发现与 STS 关于护理的学术观点进行对话,我们认为,在这种情况下,提供在线反馈可以被理解为一种护理形式,它既针对医疗保健(包括患者、专业人员、服务、组织,当然还有健康本身),又是医疗保健的一部分。我们将其概念化为“关怀护理”。这种概念化超越了在线反馈在“选择”和“声音”方面的主导框架。它将在线反馈嵌入到现有的医疗保健系统、关系和道德承诺中,突出了护理关系的相互性,并引起了对反馈实践的情感劳动的关注。