Lazarou Ioulietta, Stavropoulos Thanos G, Mpaltadoros Lampros, Nikolopoulos Spiros, Koumanakos George, Tsolaki Magda, Kompatsiaris Ioannis Yiannis
Information Technologies Institute, Center for Research and Technology Hellas (CERTH-ITI), Thessaloniki, Greece.
Medical School, Neuroscience Department, Aristotle University of Thessaloniki (AUTH), Thessaloniki, Greece.
J Alzheimers Dis Rep. 2021 Jun 11;5(1):497-513. doi: 10.3233/ADR-201001. eCollection 2021.
Mobile Health (mHealth) apps can delay the cognitive decline of people with dementia (PwD), by providing both objective assessment and cognitive enhancement.
This patient involvement survey aims to explore human factors, needs and requirements of PwD, their caregivers, and Healthcare Professionals (HCPs) with respect to supportive and interactive mHealth apps, such as brain games, medication reminders, and geolocation trackers through a constructive questionnaire.
Following the principles of user-centered design to involve end-users in design we constructed a questionnaire, containing both open-ended and closed-ended questions as well as multiple choice and Likert scale, in order to investigate the specific requirements and preferences for mHealth apps. We recruited 48 participants including people with cognitive impairment ( = 15), caregivers ( = 16), and HCPs ( = 17) and administered the questionnaire.
All participants are likely to use mHealth apps, with the primary desired features being the improvement of memory and cognition, assistance on medication treatment, and perceived ease to use. HCPs, caregivers, and PwD consider brain games as an important technology-based, non-pharmaceutical intervention. Both caregivers and patients are willing to use a medication reminder app frequently. Finally, caregivers are worried about the patient wandering. Therefore, global positioning system tracking would be particularly important to them. On the other hand, patients are concerned about their privacy, but are still willing to use a geolocation app for cases of emergency.
This research contributes to mHealth app design and potential adoption. All three groups agree that mHealth services could facilitate care and ameliorate behavioral and cognitive disturbances of patients.
移动健康(mHealth)应用程序可以通过提供客观评估和认知增强来延缓痴呆症患者(PwD)的认知衰退。
这项患者参与度调查旨在通过一份建设性问卷,探索痴呆症患者、其护理人员和医疗保健专业人员(HCPs)在支持性和交互式mHealth应用程序方面的人为因素、需求和要求,例如脑力游戏、用药提醒和地理位置追踪器。
遵循以用户为中心的设计原则,让最终用户参与设计,我们构建了一份问卷,其中包含开放式和封闭式问题以及多项选择和李克特量表,以调查对mHealth应用程序的具体要求和偏好。我们招募了48名参与者,包括认知障碍患者(n = 15)、护理人员(n = 16)和医疗保健专业人员(n = 17),并发放了问卷。
所有参与者都可能使用mHealth应用程序,主要期望的功能是改善记忆力和认知能力、药物治疗辅助以及易用性。医疗保健专业人员、护理人员和痴呆症患者认为脑力游戏是一种重要的基于技术的非药物干预措施。护理人员和患者都愿意经常使用用药提醒应用程序。最后,护理人员担心患者走失。因此,全球定位系统追踪对他们来说尤为重要。另一方面,患者关心自己的隐私,但在紧急情况下仍愿意使用地理位置应用程序。
本研究有助于mHealth应用程序的设计和潜在采用。所有三组人员都同意,mHealth服务可以促进护理并改善患者的行为和认知障碍。