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非酒精性脂肪性肝病患者自我管理体验的定性研究。

A qualitative study of self-management experiences in people with non-alcoholic fatty liver disease.

机构信息

Yonsei University College of Nursing and Mo Im Kim Research Institute, Seoul, Korea.

Yonsei University College of Nursing, Seoul, Korea.

出版信息

Nurs Open. 2021 Nov;8(6):3135-3142. doi: 10.1002/nop2.1025. Epub 2021 Aug 17.

DOI:10.1002/nop2.1025
PMID:34405583
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8510709/
Abstract

AIM

The aim of the study was to explore the experiences of self-management in patients with non-alcoholic fatty liver disease (NAFLD).

DESIGN

The study employed an exploratory descriptive qualitative study using focus group interviews.

METHODS

Twelve participants with NAFLD were recruited from a university hospital in South Korea. The date of data collection was from November-December 2018, and the data were analysed using Braun and Clarke's thematic analysis.

RESULTS

Three themes and seven subthemes were identified. The themes were (1) facing unexpected obstacles, (2) finding my own path and (3) unmet support needs from healthcare providers. Subthemes included (1) ambiguity in changing lifestyle, (2) confusion caused by inconsistent information overload, (3) not knowing much about the liver nor NAFLD, (4) putting small plans into action every day, (5) getting help from family and friends as care partners, (6) needs for tailored medical help and (7) needs for caring and attentive attitudes.

摘要

目的

本研究旨在探讨非酒精性脂肪性肝病(NAFLD)患者自我管理的体验。

设计

本研究采用焦点小组访谈的探索性描述性定性研究方法。

方法

从韩国一所大学医院招募了 12 名 NAFLD 患者。数据收集日期为 2018 年 11 月至 12 月,使用 Braun 和 Clarke 的主题分析对数据进行分析。

结果

确定了三个主题和七个子主题。这些主题是(1)面临意想不到的障碍,(2)找到自己的道路和(3)医疗保健提供者提供的支持未得到满足。子主题包括(1)改变生活方式的模糊性,(2)信息过载导致的困惑,(3)对肝脏和 NAFLD 了解甚少,(4)每天实施小计划,(5)获得家人和朋友作为护理伙伴的帮助,(6)需要量身定制的医疗帮助和(7)需要关怀和关注的态度。

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