日常生活中的认知功能：一份关于多发性硬化症日常生活工具性活动问卷的编制
Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis.
作者信息
van Dam Maureen, Sikkes Sietske Am, Rammeloo Emma, Reinders Evy, Jelgerhuis Julia R, Geurts Jeroen Jg, Uitdehaag Bernhard Mj, Hulst Hanneke E
机构信息
Department of Anatomy and Neurosciences, MS Center Amsterdam, Amsterdam Neuroscience, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Department of Neurology, Alzheimer Center Amsterdam, Amsterdam Neuroscience, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
出版信息
Mult Scler J Exp Transl Clin. 2021 Aug 3;7(3):20552173211038027. doi: 10.1177/20552173211038027. eCollection 2021 Jul-Sep.
Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q for Alzheimer's disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.
多发性硬化症患者（PwMS）的神经心理学测试分数不能完全反映其日常生活中的认知功能。因此，我们以针对阿尔茨海默病的阿姆斯特丹日常生活工具性活动问卷（Amsterdam IADL-Q）为起点，开发了一份基于日常生活工具性活动（IADL）的问卷。由（国际）专家（n = 30）、多发性硬化症患者（n = 61）和代理人（n = 30）对48个项目的相关性和清晰度进行了评估。结果，删除了4个项目，合并了2个项目，并增加了7个项目。多发性硬化症认知功能特异性IADL问卷（MS-IADL-Q）包含50个项目。有必要开展进一步研究来评估MS-IADL-Q的心理测量特性。
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