Tanguay Pamela, Décary Simon, Martineau-Roy Justine, Gravel Emilie-Maude, Gervais Isabelle, St-Jean Pascale, Tousignant Michel, Marquis Nicole
École de réadaptation, Faculté de médecine et des sciences de la santé, Université de Sherbrooke.
Centre de recherche sur les soins et les services de première ligne de l'Université Laval, Quebec City.
Physiother Can. 2021 Spring;73(2):136-144. doi: 10.3138/ptc-2019-0110.
The purpose of this article is to describe the development of a new Web platform to optimize self-management after pulmonary rehabilitation (PR) for persons living with a chronic respiratory disease (CRD) and to present data on its usability. The Web platform is informed by a theoretical framework of behaviour changes and concepts of self-management and self-efficacy. It uses breathing exercises and a logbook and is meant to be a self-management tool. Usability was tested for 8 months after PR with a group consisting of five patients with chronic obstructive pulmonary disease and one with pulmonary fibrosis. We evaluated adherence (e.g., number of exercise/weeks), quality of life, dyspnoea, and functional capacity. We measured frequency count for adherence and pre-post differences per patient for clinical outcomes. Four participants' adherence was higher than 50% of completed exercises (72 exercise/weeks). Five of six participants showed maintenance of functional capacity (6-minute walk test) 8 months after PR. Four participants showed maintenance of their quality of life. Four participants showed a deterioration in dyspnoea on the Borg Scale of Perceived Exertion. We developed a new theory-informed Web platform to optimize self-management after PR for persons living with a CRD. The pilot Web platform appears to optimize adherence to self-management techniques and possibly stabilize people's health outcomes.
本文旨在描述一个新的网络平台的开发，该平台用于优化慢性呼吸道疾病（CRD）患者肺康复（PR）后的自我管理，并展示其可用性数据。该网络平台以行为改变的理论框架以及自我管理和自我效能的概念为依据。它采用呼吸练习和日志，旨在成为一种自我管理工具。在PR后，对由五名慢性阻塞性肺疾病患者和一名肺纤维化患者组成的小组进行了为期8个月的可用性测试。我们评估了依从性（如每周锻炼次数）、生活质量、呼吸困难和功能能力。我们测量了依从性的频数计数以及每位患者临床结局的前后差异。四名参与者的依从性高于完成锻炼的50%（每周72次锻炼）。六名参与者中有五名在PR后8个月显示功能能力（6分钟步行试验）得以维持。四名参与者显示生活质量得以维持。四名参与者在Borg自觉用力量表上的呼吸困难情况有所恶化。我们开发了一个新的、基于理论的网络平台，以优化CRD患者PR后的自我管理。该试点网络平台似乎优化了对自我管理技术的依从性，并可能稳定人们的健康状况。
