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一项焦点小组和患者驱动的研究,旨在了解患者及医疗服务提供者对截肢者服务的看法。

A Focus Group- and Patient-Driven Study to Understand Patients' and Health Care Providers' Perspectives on Services for People with Amputation.

作者信息

Collins Kassondra L, Linassi A Gary, Zucker-Levin Audrey

机构信息

Health Sciences, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

Physical Medicine and Rehabilitation, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

出版信息

Physiother Can. 2021 Summer;73(3):244-251. doi: 10.3138/ptc-2019-0054.

Abstract

This study investigates patients' and health care providers' perspectives on the services provided for people with amputation in Saskatoon. We used a qualitative approach, following the Delphi method. A patient-oriented research team designed five questions and presented them to two focus groups. The discussions focused on what worked well in the health care system and what could be improved, what could be improved in the community, future research, and ways to improve specific knowledge translation regarding care of people with amputation to therapists. The two focus groups consisted of 48 panellists, all community members and health care professionals. The themes that emerged included positive experiences with prosthetic care and the individual people responsible for amputee care and improvements needed to streamline the pathways of care, community support, education, and research into all aspects of amputation. Amputation is not just a one-time medical procedure; people with amputation need lifelong support from health care providers and the community. Clear pathways of care, access to immediate support, amputee-specific education for health care providers, better patient education, increased physical therapy, and enhanced resources and care were identified as areas in need of improvement. This study will, we hope, form the basis of future research to continually improve the quality of care and support for people living with amputation.

摘要

本研究调查了萨斯卡通市截肢患者及医疗服务提供者对为截肢者提供的服务的看法。我们采用了定性研究方法,遵循德尔菲法。一个以患者为导向的研究团队设计了五个问题,并将其提交给两个焦点小组。讨论的重点是医疗保健系统中哪些方面运作良好以及哪些方面可以改进,社区中可以改进的地方,未来的研究,以及改善向治疗师传播有关截肢者护理的特定知识的方法。这两个焦点小组由48名小组成员组成,均为社区成员和医疗保健专业人员。出现的主题包括假肢护理的积极体验以及负责截肢者护理的个人,以及简化护理途径、社区支持、教育和截肢各方面研究所需的改进。截肢不仅仅是一次性的医疗程序;截肢者需要医疗服务提供者和社区的终身支持。明确的护理途径、获得即时支持的机会、针对医疗服务提供者的截肢者特定教育、更好的患者教育、增加物理治疗以及加强资源和护理被确定为需要改进的领域。我们希望这项研究将为未来的研究奠定基础,以不断提高对截肢者的护理质量和支持。

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